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Dan
Regular Poster
Registered: 02 August 2009
Posts: 11
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At the 2008 KDA conference, Dr. K. Fischbeck mentioned that Coenzyme Q10 (known as CoQ10 for short) was one of the substances that could be investigated as a treatment for KD.

Anyone interested in background information on CoQ10 could read the Wikipedia page at
Wikipedia page on CoQ10.

CoQ10 is believed to strengthen cells in patients with certain kinds of heart disease. The (totally unproven) notion was that it might do the same for nerve cells in KD patients.

I'd like to know if anyone has any newer or additional information on any such investigation of CoQ10, or if anyone has tried taking it as a dietary supplement. Thanks.
Silver Member
Picture of Bruce
Registered: 28 September 2005
Posts: 240
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Dan, I take it every day and have for several years. I cannot say whether it helps or not, but it certainly hasn't hurt. My doctor recommended it even though my blood pressure and other vascular functions are normal.
Ray
New KDA Poster
Registered: 13 February 2009
Posts: 3
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Bruce,

What amount should be taken 200mg, 400mg, etc. I started taking it awhile back because I heard that when taking statins, it gets depleted. I have recently stopped taking pravastatin. I believe it was causing more than the norm muscle weakness. Anyone experience that with the statins? Been off 7 wks. now and have noticed strength coming back.
Silver Member
Picture of Bruce
Registered: 28 September 2005
Posts: 240
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I would discuss this with your GP. I currently take 200 mg.
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