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New KDA Poster
Registered: 12 March 2007
Posts: 2
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One of my MS friends sent this to me and it appears to help symtoms of ALS, MS and Parkinson's. Since Kennedy's is simular in nature, has anyone taken this or asked your Dr about this? I am going to my Dr. the last of this month and ask him about it. On paper, it looks good?
www.lowdosenaltrexone.org
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Registered: 28 September 2005
Posts: 244
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I check with one of our Scientific Review Board to see if they know anything about the drug. Once I hear back, I will post the answer.
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Registered: 28 September 2005
Posts: 244
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We received the following response from Dr. Fischbeck. I hope this helps.

Fischbeck, Kenneth (NIH/NINDS) [E] wrote:
> There is no evidence that naltrexone is safe and effective treatment for Kennedy's disease. Also, I can find no published evidence that it works for ALS, and only anecdotal reports for MS and Parkinson's disease. It's only approved use is for alcohol dependence. It is potentially risky, in that at high doses it can cause liver damage. So I certainly don't recommend its use for KD.
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