My name is Dan and I am 43 years old. Last year I had a DNA test and was diagnosed with Kennedy's after I had a heart attack (thought to be a genetic anomoly). I was also diagnosed as a "borderline" diabetic, which is to say that if I don't watch what I eat, I am prone to falling into the duabetes easier than others.

It's been just over 1 year and I have lost 30 pounds and changed my eating habits. I still fall off the wagon, but each time it's easier to focus.

Throughout this past year I have gone through Cardiac re-hab and have trasitioned into mainstram workouts. I am gaining muscle mass and muscle fatigue seems to be limited. I play hockey and have only noticed improvemnets in the way I skate and my cardio capacity. I have gone cycling with others who are distance/time cyclists and have noticed cramping after 1.5 hours at a maintained 18 to 20 miles an hour. I think that the cramping was due to my lack of water intake.

Usually when I play hockey or any other sport, I find that if I take 2-3 advil after the event and drink water, my cramps are limited.

Does anyone have similar events or other information they can offer with regards to workouts?

Thanks

Dan

Dan, it sound like you are doing great. Keep it up, but just don't over do the exercise portion of your routines.

Bruce

Thanks Bruce, am hoping to get into swimming and running alot more and complete a triathalon in the future...even if it's just a local one.

Dan

I just wanted to update everyone on our progress on receiving answers from our neurologists on whether to exercise. The answer is YES. Exercise is good because it stimulates your motor neurons and muscles. It is something that should be done, but not over-done. Based upon my exercise experiences and the experiences of a few others with KD, I have put together a SMART EXERCISE guide. It has been reviewed and approved by three neurologists. The link to the guide is: http://www.kennedysdisease.org/disc_exercise_tips.html

Good luck and keep exercising smartly!

Bruce