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Discussion Topic  RE: Mask wearing Covid question (in Open Topic) by Cam
Covid interferes with breathing permanently. KD'ers are at risk population, which is why I qualifie......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: facial muscle weakness (in Discussion of Papers) by Cam
Thanks for the information, bluefo. I use a bi-pap, as exhaling against the constant pressure of a ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: facial muscle weakness (in Discussion of Papers) by Cam
Thanks for the info, bluefo. Can you tell me about your pillow, and describe exercises? Sounds like......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Merry Christmas and a Happy New Year! (in Open Topic) by Cam
To everyone on the forum....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Sign up for the 2020 Virtual KD Conference (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Coping (in Open Topic) by Cam
Hi Nick, welcome. Life's still good. I'm 66, no wheelchair nor pneumonia so far. While everyone's......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Pillow recommendations? (in Open Topic) by Cam
I'm having difficulty supporting my neck comfortably at night; any recommendations on pillows that w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Researchers discover how cells clear misfolded proteins from tissues (in Discussion of Papers) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Successful use of gene scissors to shorten defective gene (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Cam
Sorry to hear of your trials and tribulations. Good advice from Bob; my wife is trained to ward off......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Merry Christmas and a Happy New Year! (in Open Topic) by Cam
To all the forum....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  CRISPR improving all the time. (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Feeding tube (in Open Topic) by Cam
Pulmonologist is making noises about a feeding tube. Anyone have experience they care to share? (pm......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Cam
Not much of a down side, try it and see if it works for you....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Triggers (in Open Topic) by Cam
Stress, either physical or mental is a trigger for myself....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fatigue (in Open Topic) by Cam
Fatigue is certainly an issue for me, in fact chronic fatigue is for me, one of the most debillitati......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Merry Christmas (in Open Topic) by Cam
Merry Christmas and a Happy New Year to everybody on the forum. May your 2018 go well....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Sleep apnea - Bi-Pap machine (in Open Topic) by Cam
I’ve been trying to minimize my constant fatigue for a long time, and came to sleep apnea. I have n......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New version of CRISPER can treat ALS and Huntington's (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  New version of CRISPER can treat ALS and Huntington's (in Open Topic) by Cam
Is anyone funding CRISPER research on Kennedy's? ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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