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Discussion Topic  RE: Just diagnosed (in Open Topic) by Dave Y
Juan I was diagnosed at age 56 in 2009 and had experienced some symptoms similar to what you describ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Dave Y
Hello Pierre: before I was diagnosed with KD 10 years ago I was experiencing being awakened with lar......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Dave Y
Debbie I have found it necessary to avoid highly spiced foods and dry red wines (and I used to enjoy......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Still waiting for results (in Open Topic) by Dave Y
It is very difficult to accept the limitation that any illness or disease presents and I must admit ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Still waiting for results (in Open Topic) by Dave Y
Reed&Sam Many of your symptoms match what is typically experienced with KD so I am glad that the do......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: General introduction and health query (in Open Topic) by Dave Y
Hello Lytton I was diagnosed with KD in my mid-50s, at that time I as searching for an answer to why......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Dave Y
Dan I had shared with Bruce G. the details of some of the exercises I do regularly and I just checke......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Dave Y
Laryngospasms was also one of my early symptoms although for my most frequent experiences were while......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Statin (in Open Topic) by Dave Y
I have been taking cholesterol related drugs for many years and had significant muscle pain (shoulde......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by Dave Y
John I had been having a great deal of neck pain particularly in the morning. After I read the arti......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Hand Tremors (in Open Topic) by Dave Y
I was diagnosed with KD at age 56 but recall having hand tremors in my 20's primarily when using a s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Erythema Nodosum (in Open Topic) by Dave Y
Sagemark I have low testosterone levels but normal ALP readings and I do not have the other symptoms......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: gynecomastia and OTC drugs (in Food and Nutrition) by Dave Y
Randy I too had concerns about the "toxic" comment since my primary care doctor put me on a testost......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Dave Y
I have not taken the tracing beyond my maternal grandfather. In his case the diagnosis was ALS but ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Benefits of Physical Therapy (in Exercise Discussion) by Dave Y
Peter During the course of treatment that eventually led to the KD diagnosis it was determined that......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Statins (in Medications and Therapies) by Dave Y
Over the past 6+ years I have been prescribed a number of different statins to fight high cholestero......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: abuse humen right to KD patient (in Open Topic) by Dave Y
leon I too have trouble getting enough sleep, but recently was prescribed Trazodone 50MG to be take......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Vitamin D Supplement (in Food and Nutrition) by Dave Y
During a recent vision check up I made my eye-doctor aware of the SBMA diagnosis,he asked about visi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: New Exercise Program (in Exercise Discussion) by Dave Y
Bruce I could not agree more with your comment on using your head first. It has been almost one ye......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: NATURAL HISTORY OF KENNEDYS DISEASE (in Open Topic) by Dave Y
It is a very good idea. I would like to also participate. I have learned so much from all of you ov......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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