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Discussion Topic  RE: Woman with KD, Where are you?? (in Open Topic) by Lori Ryan-Salopek
First, I looked around the site and thought it weird that some of the recent symptoms of mine were m......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Woman with KD, Where are you?? (in Open Topic) by Lori Ryan-Salopek
Hi folks! I have been very ill and not involved with KD like I want to be, but hope I get stronger s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by Lori Ryan-Salopek
Hi new folks to KD! Very interesting...(remember Artie Johnson from Laugh In TV show?). I am very in......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Recent Testing Results (in Open Topic) by Lori Ryan-Salopek
Good day all! Update on Achalasia. I was presented at some Doctor's Convention about my conditions ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Recent Testing Results (in Open Topic) by Lori Ryan-Salopek
Howdy Folks! Well nuts are growing well here in Las Cruces,NM despite drought. Harvest hopefully g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Lori Ryan-Salopek
Just saw your son and what a cutie!!! I have tears in my eyes and goosebumps just looking at your b......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Lori Ryan-Salopek
I read your posting and can feel your fear...it is palpable! Yet, my thoughts are as follows... ado......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Interesting visit with Mayo (in Open Topic) by Lori Ryan-Salopek
Hello KD Folks! Pecan harvest went well this year and we are wrapping up shipping to our buyers as ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Cell Phone & Falling (in Open Topic) by Lori Ryan-Salopek
Just a thought for folks who fall. How about trying to remember to put cell phone in pocket of paja......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  KD Officially Posted... (in Open Topic) by Lori Ryan-Salopek
I was so excited today when in a doctor's office I picked up a Neurology Now magazine. In the back ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: I cannot smile (in Open Topic) by Lori Ryan-Salopek
Hello Jim! I wanted to tell you that my sister is an SLP and works with various patients in communi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Screw Loose! (in Open Topic) by Lori Ryan-Salopek
A second opinion revealed that my first doc is correct along with my lower joint below S-1 is squish......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Screw Loose! (in Open Topic) by Lori Ryan-Salopek
Hi KD folks. Just wanted to let you all know that doctors have found that I have a screw loose! Yu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: New Here...My dad has Kennedy's disease...have questions?? (in Open Topic) by Lori Ryan-Salopek
When my dad passed away I found out that he has KD. Years before that, my voice left me after a tra......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Lori Ryan-Salopek
Most annoying for a female...guys that won't open a door for me cuz dang, I can't do it either! Let......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Lori Ryan-Salopek
Hi folks! I tried to click on some of the links and it said the link expired or no longer used. I c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Chinese lookin' at my husband's nuts! (in Open Topic) by Lori Ryan-Salopek
Please don't make me take this one down...it's funny! I also wanted to update all the good KD folks......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Symptoms Happening More (in Open Topic) by Lori Ryan-Salopek
Hellooooo Folks! Well pecan harvesting is underway down here in Southern New Mexico(it's NUTS down ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Lori Ryan-Salopek
I had a picture of my dad standing upright during a summer vacation with my kids. He was able to ge......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Bike riding/Prayer (in Open Topic) by Lori Ryan-Salopek
Hey Folks, My dad rode his excercise bike everyday for 6 or so miles while praying the rosary. He h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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