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Discussion Topic  AR- Antagonists,PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Hello,my friends,I am a kd patient from china.The questions I need to ask include the following five......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Several understandings in the diagnosis and treatment of Kennedy's disease (in Discussion of Papers) by micheldou
KD chinese technical group of the draft In November, 2023 1. Androgen blockade, how AR antagonists a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Carrier of the disease (in Carrier Discussion) by Imokru2
My late brother contracted Kennedy’s but I did not. My mother of course was the carrier. I live in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  Hopeful News (in Medications and Therapies) by Reba
Hi, everyone, Just wondering if you have seen these clinical trials and what your thoughts are: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Poll  Bariatric Surgery on KD pacients (in Open Topic) by Vanko
Are there any known studies about bariatric surgery on KD pacients? I'm a 44 years old male carrier,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Advice for pre-symptomatic patient (in Open Topic) by Pablo Crespo
Hi everyone, My name is Pablo Crespo, and I'm 24 years old. I was diagnosed with Kennedy's disease ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Treffen der von SBMA - Betroffenen in Deutschland (in German Discussion) by bluefo
Das nächste bundesweite Treffen der an SBMA (Kennedy's Disease) Erkrankten, findet am 24.06.2023 in ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

Discussion Topic  Artificial intelligence (in Open Topic) by bartfarkel
Just for fun, I queried Chat GPT to write a CRISPR sequence that could treat Kennedy’s Disease. Here......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Increased BMs (in Open Topic) by raxel19
Hi there, Sorry for the potentially gross discussion, but has anyone experienced uptake in their BM......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Starting Journal Club (in Discussion of Papers) by Bob
Hi All, I am interested in starting a SBMA 'Journal Club' to read articles related to KD and discus......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  support group ? (in Open Topic) by Tim in TN
I'm wanting to know if anyone is interested in forming a support group. Virtual meeting perhaps (wee......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Anyone with KD in your 20's/30's? (in Open Topic) by Young
I'm a 26 yo male in the Bay Area who has been experiencing increasing symptoms in the past two year ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Neurologist in the SF Bay Area (in Open Topic) by DF
I have KD and am moving to the Bay Area in the new year. I am looking for a neurologist in the area ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Early Symptoms? (in Open Topic) by Rtrainor
Hello all, New here. Just reaching out to see if my symptoms align with KD. Here are my symptoms: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Cold Climate Challenges (in Open Topic) by Kevin W
Was wondering how cold climate may be affecting KD symptoms. I'm considering relocating the the no......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Hi intensity Exercise (in Exercise Discussion) by Robert Greer
Is anyone on a hi intensity exercise program. My name is Robert I'm 64 I would classify my KD as adv......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Swallowing exercise? (in Exercise Discussion) by KDA Adminstrator
I saw a TV show the other day where they were showing an exercise to help in being able to swallow f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Just diagnosed (in Open Topic) by Juan
Hello everyone. I am 53 and have just been diagnosed with Kennedy's disease. I am a little lost and ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Generalized Pain/Just don't feel good most of the time. (in Open Topic) by Pierre
I'm wondering, do most of you just feel bad most of the time? I have not felt "Good" in years. I w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Mestinon or pyridostigmine (in Medications and Therapies) by Dan B
There has been discussion on the Facebook group about pyridostigmine (brand name Mestinon) and I thi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Esophageal Dilation (in Open Topic) by Pierre
Has anyone had problems or experience with esophageal dilation? I have had to have my esophagus dil......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Knee or hip replacements? (in Medications and Therapies) by JonH
Anyone out there with KD ever had a knee or hip replacement after having been diagnosed with KD? If ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  EOSINOPHILIC Esophagitis (in Open Topic) by Pierre
I happend to run across this condition looking for other information about my esophageal constrictio......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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