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Discussion Topic  RE: Horrible Frustration/Depression/You Name it (in Open Topic) by Cam
You are doing the right thing by getting a second opinion. Hang in there (easy to say, tough to do)......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What is the difference? (in Open Topic) by Cam
My understanding is that ALS has the same genetic mutation as KD, but in a different location. Much......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Diagnosis/Onset (in Open Topic) by Cam
Laryngeal spasm was an alarming event for me. Often I can catch the onset, and sort-of twist my nec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Diagnosis/Onset (in Open Topic) by Cam
I had a lot of little things, cramping and weakness, for example, but didn't realize there was anyth......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any females that have this? (in Open Topic) by Cam
Hi Lori Welcome to the club 8-). Women can be carriers of the disease, but generally express few s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Stress and KD (in Open Topic) by Cam
I have a hard time controlling my voice under stress, along with the twitching and cramping. Pe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Some advice please (in Open Topic) by Cam
Sorry, Enrique, I must change my post above. Since your uncle has the disease (meaning he got it fr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Some advice please (in Open Topic) by Cam
Hi Enrique The involvement and progression on this disease is tremendously variable. Some experienc......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Some advice please (in Open Topic) by Cam
Hi John My best guess is that the test for KD is quite specific, and not very likely to be performe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Muscle wasting prevented by protein-blocker (in Open Topic) by Cam
Muscle wasting may one day be prevented by taking a drug that blocks the action of a key protein inv......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Husband recently diagnosed with KD (in Spouses & Significant Others) by Cam
Has the move to warmer climates helped your husband's symptoms at all? The cold in Manitoba makes w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Husband recently diagnosed with KD (in Spouses & Significant Others) by Cam
Good to meet you. Congratulations on a quick and correct diagnosis; many have been traumatized by a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Steroids (in Medications and Therapies) by Cam
My understanding is that testosterone exposure is what brings on the cell damage that results in KD;......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Carrier of KD (in Open Topic) by Cam
I'm biased, since if my mother decided not to have me based on my genetic profile, I would not be wr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RNA interference therapy (in Open Topic) by Cam
Read this today: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Poll  RE: Does cold Weather affect KD? (in Open Topic) by Cam
The cold petrifies me; severe cramping and not much works. I put an electric blanket under the shee......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Recently Diagnosed (in Open Topic) by Cam
Hey Darwyn. My take on your situation is - your progress seems unusually rapid. Sometimes, being m......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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