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Discussion Topic  RE: Child-Proof Caps (in Accesibility) by Bruce
Bob and Cam, great information. Thanks for sharing. These childproof caps should read ... "childpr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Bruce
Leon, please read my response under Steroids ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Bruce
Sesara, Edward is just beautiful ... just beautiful. Hope is what we have and pray is what we do....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Steroids - (in Open Topic) by Bruce
Leon, there are several different forms of IGF-1. The one that is being tested in the NIH labs is f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Bruce
AllanR, that is interesting. Intentional weakness. Perhaps it is because we are more self-consciou......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fasciculation? (in Open Topic) by Bruce
Fisher, this is a good topic. Thanks for bringing it up. In my experience, the tremors increased w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: acupuncture (in Open Topic) by Bruce
Joan, good questions. I believe I read where a person with KD tried aucupunture with little positiv......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: AFO - One that appears to work (in Accesibility) by Bruce
Cliff, thanks for sharing. That is great news ... anything is good when it makes us safer and keeps......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Bruce
Lois, thanks for sharing your last few years experiences with Kiki. Gone, but never forgotten....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Bruce
Lois, twenty years ... how wonderful. I cannot even imagine what Kiki's loss must have been like fo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Bruce
Lois, yes, your doctor will have a copy in Bob's medical file. You need to keep a copy in your reco......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Bruce
Lois, yes, the DNA test shows the number of repeats in the CAG DNA. That is the determining factor ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Bruce
Lois, whether someone wants to talk about it really depends upon the individual. Sometimes it is go......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Bruce
Lois, yes, the mental and emotional impact of KD is hardly discussed, but I see it playing an even g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Bruce
Lois, you ask some good questions. I wrote about the most recent research you mentioned in my blog.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: help with care (in Spouses & Significant Others) by Bruce
Lois, yes, there is some available aid through Medicare. The service has to be short-term in nature......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Shoes and cramps (in Mobility Aids) by Bruce
Lois, consider having Bob see a physical therapist. It was the best move I ever made (my doctor rec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Shoes and cramps (in Mobility Aids) by Bruce
Lois, the medical issue you mentioned is caused by weakness in the calf, ankle and foot muscles. We......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Shoes and cramps (in Mobility Aids) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Kennedy's disease and water retention? (in Open Topic) by Bruce
I also am not aware of water retention being related to KD. My potassium levels have been in the no......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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