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Discussion Topic  RE: Yoga and KDA (in Exercise Discussion) by Bruce
It is difficult to say. If you are a little fatigued it is probably okay. If you are fatigued to a p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Newly diagnosed (in Open Topic) by Bruce
The number of 1 in 40,000 have KD has been thrown around a lot. Some countries have a little higher ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is pneumonia vaccine recommended for people with SBMA? (in Medications and Therapies) by Bruce
Yes, Eric, the flu shots every year should be a #1 consideration for those of us living with KD. The......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Flu and Weakness (in Open Topic) by Bruce
Gregory, I'm a little late in responding, but better late than never. I hope your father has had h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
We are saying the same thing....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
Todd, yes, the 70% rule was explained to me as a way to maximize effectiveness of the exercise being......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
Todd, thanks for the update. I am pleased to hear it is going so well. Many years ago I switched my ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by Bruce
Todd, thanks for sharing this personal story. A couple of years ago I began to change some of my eat......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Respiratory Issues with SBMA (in Open Topic) by Bruce
I am sorry to hear of your father's issues. If it was me, I would ask your doctor to have a physical......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Respiratory Issues with SBMA (in Open Topic) by Bruce
The results of this study should not surprise those of us living with Kennedy's Disease, but it is s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Keeogo mobility device (in Mobility Aids) by Bruce
Paul Lazenby provided some additional comments on his experience with Keeogo. Paul provided some ad......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Anybody out there? (in Carrier Discussion) by Bruce
Susan, thank you for sharing your story. Have you been tested for KD? The DNA is a simple blood draw......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Anyone in the San Francisco Bay Area living with KD? (in Open Topic) by Bruce
Thanks, Mike for asking to be listed as another contact point in your area. Follow the link below an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Healing when going beyond the limit (in Open Topic) by Bruce
Good thoughts and observations. When I was a little younger, I often pushed myself too far and it wo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Knowing when to slow down (in Open Topic) by Bruce
Chinup, thanks for telling us your story. You are doing well and I would encourage you to continue y......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My father (in Open Topic) by Bruce
Anna, thank you for sharing. Your English expressed well your loving thoughts of your father. Thou......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Walking on the beach/sand (in Mobility Aids) by Bruce
If he still has enough leg strength and it is more a balance issue, look at cross-country ski poles ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Husband recent diagnosis of KD (in Spouses & Significant Others) by Bruce
Thank you for posting your thoughts, 2DanceAgain. The KDA website including this forum are excellent......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Novartis Trial? (in Open Topic) by Bruce
Dr. Fischbeck was kind enough to respond to my inquiry. I realize it isn't anything definitive, but ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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