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Discussion Topic  RE: Any reason not to take Requip? (in Medications and Therapies) by Bruce
I have it, but do not take anything for it. For me, it has been around for over 50 years. I live wit......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Bruce
Lolo, the situation you addressed is one that many of us experience as KD progresses. I know of seve......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Ageing with Kenndy (in Open Topic) by Bruce
Anna, thanks for posting your question. 81 and still functioning is a blessing. Aging, something al......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Questions about how you were diagnosed? Please help.. (in Open Topic) by Bruce
It was quite apparent that there were connectivity issues with the EMG. The neurologist also found s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Questions about how you were diagnosed? Please help.. (in Open Topic) by Bruce
Trent, my cpk was the initial indicator. From there I had the emg and a few other tests. After all t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Question about kennedys and CPK levels (in Open Topic) by Bruce
Trent, regarding previous generations, it probably wouldn't have been called KD at the time. Since d......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Question about kennedys and CPK levels (in Open Topic) by Bruce
CPK is usually elevated in men with KD. Often it could be in the thousands. I had an elevated CPK fo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Apps for Clinical Research (in Open Topic) by Bruce
Very interesting. This would have been great for the exercise study and might be something to monito......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Bruce
Jim, your comment is important for everyone. It is far too easy to associate every symptom and condi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is anyone using CRISPR in KD research? (in Open Topic) by Bruce
Cam there have been a couple responses to the recent articles on the use of CRISPR. The National Aca......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: DNA editing tool (in Open Topic) by Bruce
Cam, a very interesting article. We can only hope that this has potential to eradicate conditions wi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Adapting to a Life of Decreased Mobility (in Mobility Aids) by Bruce
This will be the last manual I mention in the ALS Association’s ‘Living with ALS’ series. Once again......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Coping Skills - Mind, Body and Heart (in Open Topic) by Bruce
I ran across a link to the ALS Association’s ‘Living with ALS Manuals’. Since many symptoms with ALS......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Methycobal (Methycobalmine) B12 - Any experience? (in Medications and Therapies) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Swallowing and Choking Issues (in Open Topic) by Bruce
I wrote more about this in my Living with Kennedy's Disease blog this morning, but wanted to share a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: just wanna ask (in Open Topic) by Bruce
There is a DNA test that will conclusively determine if your father has Kennedy's Disease. It is a s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: just wanna ask (in Open Topic) by Bruce
I have never heard of that. Is his doctor a neurologist? How was he diagnosed with Kennedy's Disease......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Possible I have KD, Discuss with GP or Neurologist? (in Open Topic) by Bruce
MissRD, does Kennedy's Disease run in your family (father or mother)? Even though it is highly unu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lifespan with Kennedy's Disease (in Spouses & Significant Others) by Bruce
DB, I know of several people that have used this device - most when then were in the hospital. I hop......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Request for treatment before disease onset (in Open Topic) by Bruce
Henry, good health is important. Just because we have KD, that doesn't mean we have poor health. A w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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