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Discussion Topic  RE: Steroids - (in Open Topic) by Dan B
Hello Monte, I am not a physician and therefore I am not really qualified to comment on your quest......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any females that have this? (in Open Topic) by Dan B
Here's an answer that has been published in a peer-reviewed medical journal. Following are two link......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any females that have this? (in Open Topic) by Dan B
I found another source that may help this discussion. The Muscular Dystrophy Association (MDA) publ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any females that have this? (in Open Topic) by Dan B
It is very common to hear that women can't get SBMA due to the disease being X-linked. I think it i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: swallowing (in Spouses & Significant Others) by Dan B
Bruce is exactly right. One of the forums on this site is called "Exercise Discussion" and that for......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Foods high in choline (in Food and Nutrition) by Dan B
I have been supplementing with choline for about six months now. The daily supplementation consists......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Foods high in choline (in Food and Nutrition) by Dan B
A neurologist recently mentioned to me that some of the muscle difficulties in SBMA could be caused ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Should our spouses/significat others wear Medical Alerts? (in Spouses & Significant Others) by Dan B
Information on the Vial of Life project can be found at ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Dan B
Here is a another link to a medical article that talks about a similar type of swallowing exercise. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Robo-suit from Japan, available 2012 -- wow! (in Mobility Aids) by Dan B
Check out this robo-suit from Japan, to be available in 2012 and cost about US $11,000. Looks like ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Is pneumonia vaccine recommended for people with SBMA? (in Medications and Therapies) by Dan B
I have read in several different sources that the pneumonia vaccine is recommended for everyone over......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
My local health food store sells 700 mg capsules of curcumin, so that's what I take, one per day. I......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
I decided to send an email to Dr. Chang and ask him whether there is any point in taking curcumin un......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
Ioshimo, taking 3000 milligrams at one time sounds like a lot. The brand of curcumin that I purchas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
Most people reading this forum have heard of the research being done by Dr. Chawnshang Chang on the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Coenzyme Q10 (in Medications and Therapies) by Dan B
Discussing dosage with your doctor is an excellent idea. Most of the studies looking at CoQ10 for ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Coenzyme Q10 (in Medications and Therapies) by Dan B
At the 2008 KDA conference, Dr. K. Fischbeck mentioned that Coenzyme Q10 (known as CoQ10 for short) ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Dr CHANG'S ASC-J9 -Compound against our disease (in Medications and Therapies) by Dan B
The company that is testing ASC-J9 is ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Dr CHANG'S ASC-J9 -Compound against our disease (in Medications and Therapies) by Dan B
Jean, Dr. Chang gave a presentation at the 2008 KDA conference. While his results sounded encoura......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Electrical Muscle Stimulation (EMS) (in Exercise Discussion) by Dan B
I would like to know if anyone has tried Electrical Muscle Stimulation or EMS. EMS is a technology ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion


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