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RE: Anybody out there? (in Carrier Discussion) by Ed Meyertholen Just a quick note that women with two copies of the defective gene for KD have been studied and thei...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion RE: Dutasteride; Is it working for you? (in Medications and Therapies) by Ed Meyertholen Hey Down, Just a quick set of comments - there is no evidence that KD in humans is due to overexpre...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen Hi Suzonka, There are some neuromuscular diseases that are are due to an autoimmune disease (as the...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen Hi Suzonka, Could you please post the reference for the link between autoimmune diseases and KD. T...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen Actually, women with two copies of the KD allele (are homozygous) have been found - they have what a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: New Member (in Spouses & Significant Others) by Ed Meyertholen HI Christie, I will give my 2 cents on some of your questions. With regard what to expect, there p...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others RE: Melatonin and AR in SBMA (in Food and Nutrition) by Ed Meyertholen Hi Dan, The melatonin info looks interesting. The major problem I can see (assuming that the resul...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition RE: Jaw muscles (in Open Topic) by Ed Meyertholen HI Mike, I have no idea - while I have issues with chewing due to weaken muscles (I presume), I hav...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Ed Meyertholen Hi Dan, My numb feet have no effect on my walking/running. Although this is a bit of a simplificat...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Ed Meyertholen Hey Dan, I have two sensory problems: cold feet (they always feel cold - I always wear socks aroun...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: increased liver enzyme count (in Open Topic) by Ed Meyertholen Hi John, First of all, I am not a physician and do not play one on TV (or even stayed at a Holiday ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Just examining possibilities (in Open Topic) by Ed Meyertholen HI Bulbar, First the disclaimer, I am not a physician, I am not a clinician, I am someone who has K...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Vitamin D Supplement (in Food and Nutrition) by Ed Meyertholen Hi James, There was a recent article published in which they studied the benefits and risks of vit...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition RE: Stem Cell Treatment (in Medications and Therapies) by Ed Meyertholen Hi Robert, There has been no studies done examining stem cell therapy for KD. There are no accepte...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen From Dan: Apply this same notion to our disease. Suppose, just hypothetically, that high-absorption ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen The long cell processes from nerve cells (called axons) have some ability to repair themselves - thi...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen As a person with KD, I can understand the frustration that Grove feels with regard to the rate at wh...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Any region or Surnames ever studied for KD? (in Open Topic) by Ed Meyertholen I would seriously doubt that exposure to mustard gas (or any mutagen) would cause KD in an individua...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Creatine Suppliments. (in Open Topic) by Ed Meyertholen Hey Guys, There is no data with regard to the efficacy of creatine for KD. It has not been studied...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Stem cell transplant breakthrough (in Open Topic) by Ed Meyertholen Allan, This is certainly an interesting paper and does indicate that stem cells can develop as 'nor...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic	» Refine Search » New Search

RE: Anybody out there? (in Carrier Discussion) by Ed Meyertholen
Just a quick note that women with two copies of the defective gene for KD have been studied and thei......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

RE: Dutasteride; Is it working for you? (in Medications and Therapies) by Ed Meyertholen
Hey Down, Just a quick set of comments - there is no evidence that KD in humans is due to overexpre......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen
Hi Suzonka, There are some neuromuscular diseases that are are due to an autoimmune disease (as the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen
Hi Suzonka, Could you please post the reference for the link between autoimmune diseases and KD. T......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Woman with KD, Where are you?? (in Open Topic) by Ed Meyertholen
Actually, women with two copies of the KD allele (are homozygous) have been found - they have what a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: New Member (in Spouses & Significant Others) by Ed Meyertholen
HI Christie, I will give my 2 cents on some of your questions. With regard what to expect, there p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

RE: Melatonin and AR in SBMA (in Food and Nutrition) by Ed Meyertholen
Hi Dan, The melatonin info looks interesting. The major problem I can see (assuming that the resul......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

RE: Jaw muscles (in Open Topic) by Ed Meyertholen
HI Mike, I have no idea - while I have issues with chewing due to weaken muscles (I presume), I hav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Ed Meyertholen
Hi Dan, My numb feet have no effect on my walking/running. Although this is a bit of a simplificat......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Any experience with sensory neuropathy / burning feet and ankles? (in Open Topic) by Ed Meyertholen
Hey Dan, I have two sensory problems: cold feet (they always feel cold - I always wear socks aroun......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: increased liver enzyme count (in Open Topic) by Ed Meyertholen
Hi John, First of all, I am not a physician and do not play one on TV (or even stayed at a Holiday ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Just examining possibilities (in Open Topic) by Ed Meyertholen
HI Bulbar, First the disclaimer, I am not a physician, I am not a clinician, I am someone who has K......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Vitamin D Supplement (in Food and Nutrition) by Ed Meyertholen
Hi James, There was a recent article published in which they studied the benefits and risks of vit......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

RE: Stem Cell Treatment (in Medications and Therapies) by Ed Meyertholen
Hi Robert, There has been no studies done examining stem cell therapy for KD. There are no accepte......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen
From Dan: Apply this same notion to our disease. Suppose, just hypothetically, that high-absorption ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen
The long cell processes from nerve cells (called axons) have some ability to repair themselves - thi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: From mouse to man, why it takes a long time (in Medications and Therapies) by Ed Meyertholen
As a person with KD, I can understand the frustration that Grove feels with regard to the rate at wh......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Any region or Surnames ever studied for KD? (in Open Topic) by Ed Meyertholen
I would seriously doubt that exposure to mustard gas (or any mutagen) would cause KD in an individua......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Creatine Suppliments. (in Open Topic) by Ed Meyertholen
Hey Guys, There is no data with regard to the efficacy of creatine for KD. It has not been studied......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Stem cell transplant breakthrough (in Open Topic) by Ed Meyertholen
Allan, This is certainly an interesting paper and does indicate that stem cells can develop as 'nor......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

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