Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit
Page 1 2 3 4 5 6 
Go
New
Find
Tools
Search Results: (108 matches) New Search Login/Join 

Discussion Topic  RE: New Here (in Spouses & Significant Others) by Lolo
I suppose a second opinion would be one your father or a family as a whole would need to decide. If ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: New Here (in Spouses & Significant Others) by Lolo
A muscle biopsy first followed by a genetic blood test was what confirmed Kennedy's over ALS for my ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Lolo
I too am so sorry for your loss. I cannot imagine what you have suffered both trying to help her and......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: assisted breathing (in Open Topic) by Lolo
Deb, MDA can be of great assitance. Ours really doesn't seem to know too much about KD but they do a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: assisted breathing (in Open Topic) by Lolo
Deb, Sorry to hear your dad is going through all of that. I suggest a good respiratory therapist too......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Lolo
He was just taking it in the morning. His last Dr prescribed 2X/day but for some reason, this Dr gav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Lolo
Bob, yes he does have acid reflux among a couple other things and does take the omeprazole. I'll hav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Lolo
He has a lot of phlegm. Took it last night and didn't seem to have as many "episodes." He took a sec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Lolo
Dan, just printed out the suggested exercises. Bob is dry drowning more and more often, sometimes a ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Aspiration at night (in Open Topic) by Lolo
Well, Bob was not taking his Omeprazole at night so he is trying it at night now. Between the mucine......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
Jim, I'm a little confused, are you saying your grandfather was two or your mom was 2 years old? It ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
On Bobs side: His uncle has either (mothers' brother) Kennedy's or ALS (we lean to Kennedy's as it h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
As I posted to your blog, do you think this could disappear just as it appeared? Just a thought. Ver......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
I'm glad I'm not the only one with this thought! I guess this is WHY I am willing to try to research......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
Bruce, are you saying that it could just appear? Hum, so tracing back in the family won't work?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
PS - I am here to help anyone who does not know how to trace their tree. You would need to private m......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Any region or Surnames ever studied for KD? (in Open Topic) by Lolo
I have thought about this question a lot. Since so few actually have KD, has there ever been a study......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Master's Degree Thesis project - I need your help!! (in Open Topic) by Lolo
Bruce, I love your blog! I had trouble getting to sign in but I'm in now. I am learning a lot from t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Master's Degree Thesis project - I need your help!! (in Open Topic) by Lolo
So Amy, did you find anything to help us?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Should our spouses/significat others wear Medical Alerts? (in Spouses & Significant Others) by Lolo
You could just say, "Muscular Dystrophy" so as not to have treatment with held and than hopefully, a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others


» Refine Search
» New Search

  Powered by Social Strata Page 1 2 3 4 5 6  


Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org