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Discussion Topic  RE: Castration Trials? (in Open Topic) by Lolo
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Castration Trials? (in Open Topic) by Lolo
Leon, which one of us are you agreeing with? I suspect the injections affect you like a hysterectomy......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Castration Trials? (in Open Topic) by Lolo
Allan, your last sentence really struck me, quote: Anyone in a relationship with sexual act......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Steroids - (in Open Topic) by Lolo
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: acupuncture (in Open Topic) by Lolo
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Lolo
Allan, not sure how I read into your posting, is your wife sensitive like she knows and helps or sen......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Lolo
Bob is an early riser, I'm not. It would be good for him to get on the chats. He is always "busy" an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Lolo
Bruce, you sure know how to get me teary eyed, Talking about Kiki and Bob! I suspect not talking ab......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Overactive Protein Causes Motor Neuron Death in SBMA (in Open Topic) by Lolo
Bruce, I'll have to check out your blog. As I mentioned in other posts, Bobs family is in denial a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Lolo
Are there not laws that ALL public places MUST have a handicapped toilet? We were away for a week at......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fasciculation? (in Open Topic) by Lolo
Bob take tiazadine and gabepentin which help him get through the muscle cramps. His cramps get so ba......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fasciculation? (in Open Topic) by Lolo
My spouse has them constantly and worse at night. I can see his muscles twitch all the time and wond......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Lolo
Thank you Bruce. I'll have to post a real photo of him sometime....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Lolo
Bruce, we are both on a medicare advantage plan and I think there is a $25 co-pay for each visit. I ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Lolo
He had to "retire" as he broke his hip 3 months before diagnosis. He had a very physical job which h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What to expect when you have SBMA / Kennedy's Disease (in Open Topic) by Lolo
Unfortunately, Bob isn't sure where he put his results. I suppose we could call the DR or MDA clinic......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: help with care (in Spouses & Significant Others) by Lolo
I'm worried about this same subject. We do not know which one of us will need to help the other firs......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Glimmer of hope for future generations? (in Open Topic) by Lolo
John, I totally understand where you are coming from on the Christian side of all of this. If all ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Shoes and cramps (in Mobility Aids) by Lolo
I'll tell him. We really don't have the funds to go to therapy, we'll see. Bob moves everyday by doi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Shoes and cramps (in Mobility Aids) by Lolo
His left foot dropped before he got his diagnosis. He does have AFO's but won't wear them as he says......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids


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Kennedy's Disease Association
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