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Discussion Topic  RE: A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by ToddAllen
The muscle gain isn't as great as it sounds. The previous 3 months I did an aggressive weight loss ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by ToddAllen
You are welcome. I speculate based on my limited understanding of biology and some personal experim......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by ToddAllen
There are similarities between sarcopenia and KD that may make this study of interest to us. The ful......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: ALS Assoc. Ask The Experts 2018 (in Discussion of Papers) by ToddAllen
Thanks Bob! Great stuff....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  RE: 25 years old high CPK level (in Open Topic) by ToddAllen
I find I do best with a lot of low intensity activity such as standing, stretching and walking plus ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 25 years old high CPK level (in Open Topic) by ToddAllen
Henry I started getting the shaking and fasciculations in my teens. I didn't start monitoring my CP......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 25 years old high CPK level (in Open Topic) by ToddAllen
It sounds like you have KD. You can get the genetic test and know for certain. Progression with KD......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fatigue (in Open Topic) by ToddAllen
I struggled with fatigue when I was in poor metabolic health as marked by elevated blood sugar, bloo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: A great result for Huntington's Disease (in Open Topic) by ToddAllen
Bob, you raise a good point. The Huntington's gene is on a chromosome that we get a copy of from ea......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Knees Buckling (in Exercise Discussion) by ToddAllen
I struggled increasingly with this for many years and got to the point where I was falling several t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Unusual problem! (in Open Topic) by ToddAllen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Unusual problem! (in Open Topic) by ToddAllen
Here are more details of things I struggled with, don't know how similar it is for you. My skin use......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Unusual problem! (in Open Topic) by ToddAllen
Elvira, while KD may be contributing to your symptoms my guess is you have something else going on t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Hello Everyone (in 'Carrier' Discussions) by ToddAllen
Elvira, in general women don't develop the symptoms of KD probably because their testosterone level ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > 'Carrier' Discussions

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by ToddAllen
I also find the RNA editing promising. DNA editing is kind of scary if the editing technique isn't ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by ToddAllen
Dan, thanks for posting about Luxturna. Note though it is a gene therapy, ie they insert a gene to ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Free powerchair available in Albion, MI (in Mobility Aids) by ToddAllen
See the notice at the bottom of the KDA's website homepage. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Early correct diagnosis? (in Open Topic) by ToddAllen
I developed facial tremors that I saw in my grandfather. I got his autopsy report and among the fin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Early correct diagnosis? (in Open Topic) by ToddAllen
I've heard from a few people they were first diagnosed with ALS. Horrific to contemplate being told......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: After decades of uninterrupted decline I'm making rapid gains (in Open Topic) by ToddAllen
The improvements I’ve experienced are probably due to reversing all 5 biomarkers metabolic syndrome.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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