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Discussion Topic  RE: Statins (in Medications and Therapies) by AllanR
I had muscle weakness and mild pain in my legs from taking a statin. I use Lopid (Gemfibrozil) for ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  neurturin (in Medications and Therapies) by AllanR
Ceregene is doing clinical trials on Neurturin, without good results on Parkinson's. They are going ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Indego from Parker/Hannifin (in Mobility Aids) by AllanR
Indego has a new prosthetic device that looks promising. It's only in the trials stage, but I like t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Vitamin D Supplement (in Food and Nutrition) by AllanR
A good and lively discussion group on osteoporosis, osteopenia, vitamin D and other related topics i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Vitamin D Supplement (in Food and Nutrition) by AllanR
i had a bone scan several weeks ago.i do not have osteoporosis, but my left hip has a bit less densi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Long term disability insurance (in Social Secuirty-Disability and Financial Discussion) by AllanR
Sadly, with KD, you are not likely to be able to get LTD insurance. I went through a broker who pol......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Social Secuirty-Disability and Financial Discussion

Discussion Topic  RE: gynecomastia and OTC drugs (in Food and Nutrition) by AllanR
I remember this discussion (from 2008) where Dr Lieberman commented on the use of testosterone: RAIL......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: gynecomastia and OTC drugs (in Food and Nutrition) by AllanR
Testosterone appears to exacerbate symptoms of KD. One observation noted by NIH researchers was when......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: reclast (in Medications and Therapies) by AllanR
Last week, I got the second yearly infusion of Reclast. My doctor thought I would "probably" not hav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: reclast (in Medications and Therapies) by AllanR
The next day after having the Reclast infusion, I went to work as usual. However, I started feeling ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: reclast (in Medications and Therapies) by AllanR
I had my 1-hour infusion today. The nurse told me that she had done many such infusions of reclast, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  reclast (in Medications and Therapies) by AllanR
My doctor is prescribing Reclast for osteopenia. I see one of the effects that people experience is ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: From mouse to man, why it takes a long time (in Medications and Therapies) by AllanR
Regeneration of neuronal cells is not as futuristic as it might appear. They are regenerating brain ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Calf stimulator for walking (in Mobility Aids) by AllanR
Thanks for the references. It appears that the cost is around $6500 for Bioness, and about $4500 for......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Calf stimulator for walking (in Mobility Aids) by AllanR
In the most recent AARP Magazine (December 2011), there was a "puff piece" about Meredith Vieira and......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Dutasteride; Is it working for you? (in Medications and Therapies) by AllanR
I was in the NIH trial and took it for two years. The results were a slight increase in strength in......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Stem cell transplant breakthrough (in Open Topic) by AllanR
British researchers have successfully transplanted brain stem cells to obese mice with leptin defici......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fell Yesterday (in Open Topic) by AllanR
Every once in a while, my left leg stops functioning and turns to jelly: an inevitable fall follows.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by AllanR
During the latest KDA Convention in San Diego, the moderator asked if anyone had ever passed out fro......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Castration Trials? (in Open Topic) by AllanR
lori, interesting response. it's a tradeoff -- sex vs. strength. Deciding to eliminate sexual capabi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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