Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit
Kennedys Disease Association Homepage    Kennedys Disease Community    Forums  Hop To Forum Categories  Research  Hop To Forums  Discussion of Papers    ALS Assoc. Ask The Experts 2018
Go
New
Find
Notify
Tools
Reply
  
ALS Assoc. Ask The Experts 2018
 Login/Join
 
Location: San Luis Obispo CA
Registered: 10-10-2005
Posts: 161
posted   Reply With QuoteReport This Post  
Golden West Chapter of ALS Association - 2018 Ask the Experts Palo ALto
Links to topics from the YouTube copy of the live stream.
Most sections have something of interest to SBMA community.
* indicates research direct applicability to SBMA, * * indicates of high interest.


2018- "Ask the Experts"- Palo Alto
https://www.youtube.com/watch?v=HX5ms2eTsEM

Event Page

** UPDATE: Other events archive

Links into the copy of the live stream:

First Session - Dealing with ALS

John Day
Michelle Cao – Pulmonology - Breathing and Sleep
19m49s
CPAP – not recommended * 26:00

Sarah Stranberg – Swallowing
45m26s

Neelam Goyal - Saliva Management
1h4m45s

Jacinda Sampson – Genetic Testing/Counseling
1h19m39s

Connie Wolford – ALS Treatments/Insurance
1h19m39s


2nd Session – research
2h33m58s

Research Overview
2h37m4s

Robert Baloh – Cedars-Sinai Medical Center
Stem Cell Therapy
2h43m40s
Upper and lower motor neurons *
Clinic Trials 2:48:48
Stem Cells 2:50:32

* * HOT * *
John Day – Stanford USM
Antisense, SMA and ALS * *
3h12m42s

Aaron Gitler – Stanford
Expanding Mechanisms and Therapeutic Targets for ALS
3h32m25s
Protein Clumping *
CAG Syndromes and CAG repeats 3:38:38 * *

Presentation Overview/Overview of ALS Research
Lucio Bruijn – Chief Scientist, ALS Association
3h53m30s

This message has been edited. Last edited by: Bob Heitzman,


=================
email:rheitzman at gmail
Picture of ToddAllen
Location: Chicago, IL
Registered: 01-18-2008
Posts: 190
posted   Hide PostReply With QuoteReport This Post  
Thanks Bob! Great stuff.
  Powered by Social Strata  
 

Kennedys Disease Association Homepage    Kennedys Disease Community    Forums  Hop To Forum Categories  Research  Hop To Forums  Discussion of Papers    ALS Assoc. Ask The Experts 2018

Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org