Golden West Chapter of ALS Association - 2018 Ask the Experts Palo ALto
Links to topics from the YouTube copy of the live stream.
Most sections have something of interest to SBMA community.
* indicates research direct applicability to SBMA, * * indicates of high interest.


2018- "Ask the Experts"- Palo Alto
https://www.youtube.com/watch?v=HX5ms2eTsEM

Event Page

** UPDATE: Other events archive

Links into the copy of the live stream:

First Session - Dealing with ALS

John Day
Michelle Cao – Pulmonology - Breathing and Sleep
19m49s
CPAP – not recommended * 26:00

Sarah Stranberg – Swallowing
45m26s

Neelam Goyal - Saliva Management
1h4m45s

Jacinda Sampson – Genetic Testing/Counseling
1h19m39s

Connie Wolford – ALS Treatments/Insurance
1h19m39s


2nd Session – research
2h33m58s

Research Overview
2h37m4s

Robert Baloh – Cedars-Sinai Medical Center
Stem Cell Therapy
2h43m40s
Upper and lower motor neurons *
Clinic Trials 2:48:48
Stem Cells 2:50:32

* * HOT * *
John Day – Stanford USM
Antisense, SMA and ALS * *
3h12m42s

Aaron Gitler – Stanford
Expanding Mechanisms and Therapeutic Targets for ALS
3h32m25s
Protein Clumping *
CAG Syndromes and CAG repeats 3:38:38 * *

Presentation Overview/Overview of ALS Research
Lucio Bruijn – Chief Scientist, ALS Association
3h53m30s

This message has been edited. Last edited by: Bob Heitzman,

Thanks Bob! Great stuff.