Welcome to the Kennedy's Disease Association (KDA) Forums
content is personal opinion of each participant and not endorsed by the KDA
content is personal opinion of each participant and not endorsed by the KDA
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| Research Current research updates and papers. | Latest Post: |
| Forum | Topics | Posts | Last Topic | |
|---|---|---|---|---|
| Discussion of Papers Links to SBMA research with discussion | 15 | 71 | Re: AR- Antagonists，PROTAC) for me... (ToddAllen) |
| General Discussion | Latest Post: |
| Forum | Topics | Posts | Last Topic | |
|---|---|---|---|---|
| Open Topic A place to post miscellaneous topics and conversations | 329 | 1900 | KD-Men's Zoom Chat (bluefo) |
| Carrier Discussion Genetics Discussion and carrier support. | 11 | 74 | Re: Carrier of the disease (ToddAllen) |
| Accesibility Information/Discussions on Accessibility issues and devices to make life easier for those daily challenges. | 15 | 73 | Re: Back brace - would it help? (Bulkington) |
| Mobility Aids Discussions on Scooters, Lifts, Vehicle transport of your wheelchair/scooter, Canes, and more. | 30 | 183 | Re: LIberty Cane (ToddAllen) |
| Exercise Discussion Discussion on if you find exercise benificial to helping you with Kennedy's Disease. (Note: there have been no studies done on exercise and KD as of yet) | 21 | 170 | Re: Hi intensity Exercise (dorsey) |
| Medications and Therapies Medications that individuals with Kennedy's Disease take. Discussions on how they affect individuals and side effects. Also, Massage, Acupuncture, Herbal, etc.? Discuss therapies here and what they have done for you. | 61 | 351 | Re: HBM or HMB Supplements to comb... (ToddAllen) |
| Spouses & Significant Others A place to discuss topics on caring for a loved one with KD and dealing with day to day issues. Support group discussion. | 15 | 101 | |
| Food and Nutrition Diet & Kennedy's Disease discussions | 18 | 118 | Re: Foods that make me choke (carolynslowe) |
| Social Secuirty-Disability and Financial Discussion Tips/Advice on making the process of applying and getting approved for Social Security Disability easier. Also, discussions on financial planning for the future. | 3 | 26 | |
| Fundraising Discussion Do you have a fundraising idea? Post your thoughts here. Do you want to run a fundraiser for the KDA? | 3 | 24 | Re: Raise Funds for KDA Each Time ... (pioneer07) |
| Great Britain This category is for those people living with Kennedy's Disease in Great Britain. | Latest Post: |
| Forum | Topics | Posts | Last Topic | |
|---|---|---|---|---|
| Open Topic A place to post miscellaneous topics and conversations | 11 | 72 | |
| 'Carrier' Discussions Genetics Discussion and carrier support. | 2 | 5 | Ventilator Use (Kacie) |
| Spouses & Significant Others Discussions A place to discuss topics on caring for a loved one with KD and dealing with day to day issues. Support group discussion. | 0 | 0 | |
| Medications & Therapies Medications and therapies that individuals with Kennedy's Disease take or are involved in. Discussions on how they affect individuals and side effects. | 1 | 10 | Re: Quinine Sulphate. (Cam) |
| Foreign Language Forum | Latest Post: |
| Forum | Topics | Posts | Last Topic | |
|---|---|---|---|---|
| German Discussion A place for our German KDA members to communicate. | 3 | 6 | Re: Selbsthilfegruppe, Facebook, P... (ToddAllen) |
| Spanish Discussion A place for our Spanish KDA members to communicate. | 3 | 7 | Re: medicación (Javier Bayona) |
| Russian Discussion A place for our Russian KDA members to communicate. | 2 | 9 | Re: Встречи KDA в Европе (ToddAllen) |
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Registered Members: 637
Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org