Here is the link to the Kennedy's Disease group in Great Britain:
Kennedy's Disease - Great Britain
This is the link to the KDA Facebook Page:
This is the link to the KDA Website:
This is the link to the "Living with Kennedy's Disease" blog:
Location: rochdale. england.
Hi everyone. I write to congratulate Eric and his 'team' on the progress he and they have made regarding the setting up of the UK forum and website. There is so much work that is unseen by the rest of us, I for one am greatly impressed and grateful for their efforts.
Location: Cornwall. UK
Always good to hear from you. Things are looking good for us regarding our awareness campaign. Karen our treasurer, and Diane our secretary are doing a great job behind the scenes. Cornwall Disability have agreed to do a feature in their monthly magazine about what we are doing and beyond that we are going to try and get some national coverage in other magazines. As soon as the cycle events are done we shall be making a start on our leaflet and cover letter distribution. We have had to apply for charity status with HMRC and the Charity Comission so in the future we will be able to help fundraise for research into KD. So all is good. Best wishes to you Graham and hoping you are coping ok. Eric
Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614