Location: Knoxville TN
I'm wanting to know if anyone is interested in forming a support group. Virtual meeting perhaps (weekly, every other week, monthly?). Possibly even two groups, one for patients the other for care takers.
I know my wife and I both struggle at times managing the mental aspects of how this disease is affecting our lives.
Location: North Carolina, USA
Men’s Support Group
It sounds like there is significant interest in forming an online support group. To get things going, we will have a kickoff zoom meeting for men on Saturday February 25th at 12:00 noon EST. During this first call, we will: 1) introduce ourselves; 2) pick a time for regular calls; 3) identify discussion topics; and 4) identify volunteers to help facilitate each call. If you are interested in participating, email [MensZoomChat@kennedysdisease.org](mailto:MensZoomChat@kennedysdisease.org) to receive a zoom invite.
If you would like to join a carrier or care giver support group, send an email to the same address ([MensZoomChat@kennedysdisease.org](mailto:MensZoomChat@kennedysdisease.org)) and indicate your interest. We will then get you in touch with the right people.
Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614