I'm wanting to know if anyone is interested in forming a support group. Virtual meeting perhaps (weekly, every other week, monthly?). Possibly even two groups, one for patients the other for care takers.
I know my wife and I both struggle at times managing the mental aspects of how this disease is affecting our lives.

Men’s Support Group

It sounds like there is significant interest in forming an online support group. To get things going, we will have a kickoff zoom meeting for men on Saturday February 25th at 12:00 noon EST. During this first call, we will: 1) introduce ourselves; 2) pick a time for regular calls; 3) identify discussion topics; and 4) identify volunteers to help facilitate each call. If you are interested in participating, email [MensZoomChat@kennedysdisease.org](mailto:MensZoomChat@kennedysdisease.org) to receive a zoom invite.

If you would like to join a carrier or care giver support group, send an email to the same address ([MensZoomChat@kennedysdisease.org](mailto:MensZoomChat@kennedysdisease.org)) and indicate your interest. We will then get you in touch with the right people.