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Location: Pocatello, ID Registered: 05-24-2008 Posts: 109 | Just got an email from my neurologist. The blood test came back and confirmed Kennedy's Disease. Pocatello Jim |
Registered: 09-28-2005 Posts: 654 | Hey Jim, sorry to hear the news, but at least you now know what you are dealing with. The KDA has a bunch of resources available on their web site to help (information, help guides, links to other resources, etc.). It is important that both you and your family become more aware of Kennedy's Disease (e.g. how it will progress, whether you have any carriers in the family, whether you should exercise and how to exercise, etc.). Also, the KDA Chat Room is an excellent place to make friends and get answers to needed questions. Come join us on the 1st and 3rd Saturdays of each month from 10:30 until 11:30 AM EDT. If we can be of service, please don't hesitate to ask. Bruce |
Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org