KDA Conference
Hello,
I am wondering if any of those who were able to attend the KDA Conference would mind sharing some of the highlights.
Thanks,
Tony
11-20-2011, 12:44 PM
John CoakleyHi Tony;
Great conference - 44 attendees PLUS 20 Doctors & Researchers from USA, Canada, China, Japan & Italy.
11-21-2011, 05:14 PM
Dan BTony, the conference was excellent and I definitely recommending attending next year if you can travel. Presentation topics included:
- Nutrition;
- Home Modifications;
- Dealing with Frustration and Anger by Lora Clawson from Johns Hopkins (which was my personal favorite presentation);
- Breakout discussion sessions for men and women separately;
- Doctors and Researchers Update; and
- the ever-popular dinner and silent auction.
There was also some discussion of the research study currently underway at NIH on the effect of exercise on people with SBMA.
http://www.clinicaltrials.gov/...exercise+sbmaJust the opportunity to meet the other people with SBMA and hear their stories is worth the trip.
This message has been edited. Last edited by: Dan B,