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KDA Conference
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Registered: 12-08-2010
Posts: 10
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Hello,
I am wondering if any of those who were able to attend the KDA Conference would mind sharing some of the highlights.
Thanks,
Tony
Location: Westminster, Maryland
Registered: 09-28-2005
Posts: 2
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Hi Tony;

Great conference - 44 attendees PLUS 20 Doctors & Researchers from USA, Canada, China, Japan & Italy.


John C.
Registered: 08-02-2009
Posts: 206
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Tony, the conference was excellent and I definitely recommending attending next year if you can travel. Presentation topics included:

  • Nutrition;
  • Home Modifications;
  • Dealing with Frustration and Anger by Lora Clawson from Johns Hopkins (which was my personal favorite presentation);
  • Breakout discussion sessions for men and women separately;
  • Doctors and Researchers Update; and
  • the ever-popular dinner and silent auction.


There was also some discussion of the research study currently underway at NIH on the effect of exercise on people with SBMA.
http://www.clinicaltrials.gov/...exercise+sbma

Just the opportunity to meet the other people with SBMA and hear their stories is worth the trip.

This message has been edited. Last edited by: Dan B,
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Kennedy's Disease Association
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