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RE: Just diagnosed (in Open Topic) by Dave Y Juan I was diagnosed at age 56 in 2009 and had experienced some symptoms similar to what you describ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Just diagnosed (in Open Topic) by Juan Hello everyone. I am 53 and have just been diagnosed with Kennedy's disease. I am a little lost and ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by Pierre Thanks Todd! And thank you to Dorsey, your question and Todds response have opened my eyes to thing...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by ToddAllen Pierre, I felt similar in my 40s. I was trying to adapt to having an untreatable progressive diseas...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by dorsey Can you describe your pain more or symptoms? I generally for the most feel well. I do have periods t...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Generalized Pain/Just don't feel good most of the time. (in Open Topic) by Pierre I'm wondering, do most of you just feel bad most of the time? I have not felt "Good" in years. I w...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Mestinon or pyridostigmine (in Medications and Therapies) by ToddAllen Dan, nice summary.... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Mestinon or pyridostigmine (in Medications and Therapies) by Dan B There has been discussion on the Facebook group about pyridostigmine (brand name Mestinon) and I thi...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Esophageal Dilation (in Open Topic) by Pierre Thanks Todd, I will certainly post updates as I get them. I have an appointment with my doctor earl...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Esophageal Dilation (in Open Topic) by ToddAllen Pierre, I've also had trouble with choking. Years ago it was much worse but rarely bothers me now. ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Esophageal Dilation (in Open Topic) by Pierre Has anyone had problems or experience with esophageal dilation? I have had to have my esophagus dil...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Knee or hip replacements? (in Medications and Therapies) by ToddAllen Robert, excellent to hear you have bounced back from breaking both hips and now have a vigorous exer...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Knee or hip replacements? (in Medications and Therapies) by Robert Greer Hi Jon I've had Kennedy's for 20 years. I broke both hips last year in falls. One in June the other ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies EOSINOPHILIC Esophagitis (in Open Topic) by Pierre I happend to run across this condition looking for other information about my esophageal constrictio...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic	» Refine Search » New Search

RE: Just diagnosed (in Open Topic) by Dave Y
Juan I was diagnosed at age 56 in 2009 and had experienced some symptoms similar to what you describ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Just diagnosed (in Open Topic) by Juan
Hello everyone. I am 53 and have just been diagnosed with Kennedy's disease. I am a little lost and ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by Pierre
Thanks Todd! And thank you to Dorsey, your question and Todds response have opened my eyes to thing......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by ToddAllen
Pierre, I felt similar in my 40s. I was trying to adapt to having an untreatable progressive diseas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Generalized Pain/Just don't feel good most of the time. (in Open Topic) by dorsey
Can you describe your pain more or symptoms? I generally for the most feel well. I do have periods t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Generalized Pain/Just don't feel good most of the time. (in Open Topic) by Pierre
I'm wondering, do most of you just feel bad most of the time? I have not felt "Good" in years. I w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Mestinon or pyridostigmine (in Medications and Therapies) by ToddAllen
Dan, nice summary....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Mestinon or pyridostigmine (in Medications and Therapies) by Dan B
There has been discussion on the Facebook group about pyridostigmine (brand name Mestinon) and I thi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Esophageal Dilation (in Open Topic) by Pierre
Thanks Todd, I will certainly post updates as I get them. I have an appointment with my doctor earl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Esophageal Dilation (in Open Topic) by ToddAllen
Pierre, I've also had trouble with choking. Years ago it was much worse but rarely bothers me now. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Esophageal Dilation (in Open Topic) by Pierre
Has anyone had problems or experience with esophageal dilation? I have had to have my esophagus dil......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Knee or hip replacements? (in Medications and Therapies) by ToddAllen
Robert, excellent to hear you have bounced back from breaking both hips and now have a vigorous exer......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Knee or hip replacements? (in Medications and Therapies) by Robert Greer
Hi Jon I've had Kennedy's for 20 years. I broke both hips last year in falls. One in June the other ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

EOSINOPHILIC Esophagitis (in Open Topic) by Pierre
I happend to run across this condition looking for other information about my esophageal constrictio......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

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PO Box 1105 Coarsegold CA 93614
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