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Discussion Topic  Anybody out there? (in Carrier Discussion) by Suzonka
I keep hearing all sorts of different info on Women Carriers or their supposed mild symptoms. If a w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  Swallowing and Choking Issues (in Open Topic) by Bruce
I wrote more about this in my Living with Kennedy's Disease blog this morning, but wanted to share a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Power Chairs (in Mobility Aids) by Bob Heitzman
Bruce has published a good ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Wheelchair Survey - $25 gift card (in Open Topic) by Bob Heitzman
Earn $25 Amazon gift card. They say they don't sell your info, but they must sell something. Probabl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  shoes (in Open Topic) by bartfarkel
Hey guys, Any recommendations on brands and types of shoes? I find it’s easier to walk in certain t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Secondary Sex Characteristics And Kennedy's Disease (in Open Topic) by mj
Does anyone here have any feedback on what their androgen levels were prior to or when they were dia......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Gene level therapy? (in Open Topic) by Bob Heitzman
A recent ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  25 years old high CPK level (in Open Topic) by Henry
Hello everyone!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Selbsthilfegruppen SBMA in Deutschland (in German Discussion) by bluefo
Mittlerweile gibt es zwei Selbsthilfegruppen für an SBMA Erkrankte in Deutschland Selbsthilfegruppe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

Discussion Topic  A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by ToddAllen
There are similarities between sarcopenia and KD that may make this study of interest to us. The ful......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  ALS Assoc. Ask The Experts 2018 (in Discussion of Papers) by Bob Heitzman
Golden West Chapter of ALS Association - 2018 Ask the Experts Palo ALto Links to topics from the You......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Fatigue (in Open Topic) by 2DanceAgain
Is fatigue an common issue with Kennedy's disease. It is hard to figure out if the fatigue issues ar......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Merry Christmas (in Open Topic) by Cam
Merry Christmas and a Happy New Year to everybody on the forum. May your 2018 go well....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Conference materials? (in Open Topic) by C.D.Harris
I attended the conference a few weeks ago and thought I heard that the slides and other materials us......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  A great result for Huntington's Disease (in Open Topic) by Ed Meyertholen
Ionis and Roche (two pharma companies) issued a press release with regard to a clinical trial using ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Dad and KD (in Spouses & Significant Others) by jr_cf
My father (65yr old male) was diagnosed with KD approx 7 years ago. Unfortunately, around the same t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  SW Denver anyone? (in Open Topic) by Bob Heitzman
I'm considering moving to SW Denver (Lakewood) to be near one of my sons in Evergreen and his family......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Bob Heitzman
Has anyone tried EMS to help deal with the muscular atrophy? Anyone have insight into if EMS may be......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Creatine Suppliments. (in Open Topic) by graham lee
Has anyone any information on 'Creatine Suppliments' I have made recent contact with a man who has K......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Knees Buckling (in Exercise Discussion) by Bruce
For several years my knees have buckled without any warning. Several times I have broken bones in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Products (in Food and Nutrition) by Lori Ryan-Salopek
I have taken the Juice-Plus supps. and like the idea that there is a vegetable blend, berry blend, a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Yoga and KDA (in Exercise Discussion) by Naomi
I am a yoga instructor and I would to make sure I offer challenging and appropriate sessions to a ne......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
Most people reading this forum have heard of the research being done by Dr. Chawnshang Chang on the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Unusual problem! (in Open Topic) by Elvira
Hi! I have a rather strange problem. Want to know if anyone here recognise it. First a little about ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Ventilator Use (in 'Carrier' Discussions) by Kacie
Hello, My name is Kacie, I am a carrier. My father has KD and is almost 67. This past summer he ha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > 'Carrier' Discussions

Discussion Topic  Sleep apnea - Bi-Pap machine (in Open Topic) by Cam
I’ve been trying to minimize my constant fatigue for a long time, and came to sleep apnea. I have n......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Hello Everyone (in 'Carrier' Discussions) by Elvira
Hi! My name is Elvira and I live in Sweden. My father has Kennedys disease and me and my sister are ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > 'Carrier' Discussions

Discussion Topic  Could genome editing be a cure? (in Medications and Therapies) by C.D.Harris
Read this article today in our Sunday paper. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  CRISPR research in Muscular Dystrophy (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Early correct diagnosis? (in Open Topic) by Mickle Spiffy
My first diagnosis was ALS, then CIDP then some slow, not yet understood form of ALS until they hit ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Free powerchair available in Albion, MI (in Mobility Aids) by ToddAllen
See the notice at the bottom of the KDA's website homepage. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Is pneumonia vaccine recommended for people with SBMA? (in Medications and Therapies) by Dan B
I have read in several different sources that the pneumonia vaccine is recommended for everyone over......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Newly diagnosed (in Open Topic) by Brad0608
Here goes my earliest symptom I can remember is my shoulder trembling when leaning on it thought no......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Check Out The Handy Cane (in Mobility Aids) by mlkrgr
Just came across a cool new cane that also acts as a grabber. The interesting thing is that you can ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Travel Scoot (in Mobility Aids) by Cam
Check out this light weight scooter. Just the thing for travel or not quite ready for a full-on pow......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Calf stimulator for walking (in Mobility Aids) by AllanR
In the most recent AARP Magazine (December 2011), there was a "puff piece" about Meredith Vieira and......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Встречи KDA в Европе (in Russian Discussion) by Boris Zverev
Бывают ли встречи KDA, организованные в Европе? В Штаты летать из Москвы довольно сложно....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Russian Discussion

Discussion Topic  New version of CRISPER can treat ALS and Huntington's (in Open Topic) by Cam
Is anyone funding CRISPER research on Kennedy's? ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Just diagnosed (in Open Topic) by Mickle Spiffy
Tell me about this conference in November. What goes on?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  TNT chip a pathway for treatment/cure? (in Open Topic) by raxel19
Very incredible article from USA Today about Ohio University's development of a chip that delivers v......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Flu and Weakness (in Open Topic) by Gregory
Dear all, my name is Gregory and I am new in this forum. My dad has diagnosed and starting to have t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Диагностирование Болезни Кеннеди (in Russian Discussion) by Boris Zverev
Кто скажет, где в России есть неврологи, умеющие диагностировать эту болезнь?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Russian Discussion

Discussion Topic  Improve the strength and flexibility of your fingers (in Exercise Discussion) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Correlation of insulin resistance and motor function in SBMA (in Discussion of Papers) by ToddAllen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Back brace - would it help? (in Accesibility) by Bulkington
I am wondering if the occasional use of a back brace would be beneficial to me. I do not currently ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  Respiratory Issues with SBMA (in Open Topic) by Bruce
The results of this study should not surprise those of us living with Kennedy's Disease, but it is s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Keeogo mobility device (in Mobility Aids) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Available Exo-skeletons (in Open Topic) by Cam
This could be a game-changer if volume production can bring down costs: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Making my own mobility scooters (in Mobility Aids) by ToddAllen
A couple years ago my wife and I decided to commit to staying in our house and put in an elevator. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Season's Greetings (in Open Topic) by Cam
Hope everyone had a great Christmas and enjoys a Happy New Year....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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