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Discussion Topic  Anybody out there? (in Carrier Discussion) by Suzonka
I keep hearing all sorts of different info on Women Carriers or their supposed mild symptoms. If a w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  Swallowing and Choking Issues (in Open Topic) by Bruce
I wrote more about this in my Living with Kennedy's Disease blog this morning, but wanted to share a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Power Chairs (in Mobility Aids) by Bob Heitzman
Bruce has published a good ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Wheelchair Survey - $25 gift card (in Open Topic) by Bob Heitzman
Earn $25 Amazon gift card. They say they don't sell your info, but they must sell something. Probabl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  shoes (in Open Topic) by bartfarkel
Hey guys, Any recommendations on brands and types of shoes? I find it’s easier to walk in certain t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Secondary Sex Characteristics And Kennedy's Disease (in Open Topic) by mj
Does anyone here have any feedback on what their androgen levels were prior to or when they were dia......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Gene level therapy? (in Open Topic) by Bob Heitzman
A recent ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  25 years old high CPK level (in Open Topic) by Henry
Hello everyone!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Selbsthilfegruppen SBMA in Deutschland (in German Discussion) by bluefo
Mittlerweile gibt es zwei Selbsthilfegruppen für an SBMA Erkrankte in Deutschland Selbsthilfegruppe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > German Discussion

Discussion Topic  A high whey protein, vitamin D and E supplement preserves muscle mass, strength, and (in Discussion of Papers) by ToddAllen
There are similarities between sarcopenia and KD that may make this study of interest to us. The ful......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  ALS Assoc. Ask The Experts 2018 (in Discussion of Papers) by Bob Heitzman
Golden West Chapter of ALS Association - 2018 Ask the Experts Palo ALto Links to topics from the You......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Fatigue (in Open Topic) by 2DanceAgain
Is fatigue an common issue with Kennedy's disease. It is hard to figure out if the fatigue issues ar......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Merry Christmas (in Open Topic) by Cam
Merry Christmas and a Happy New Year to everybody on the forum. May your 2018 go well....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Conference materials? (in Open Topic) by C.D.Harris
I attended the conference a few weeks ago and thought I heard that the slides and other materials us......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  A great result for Huntington's Disease (in Open Topic) by Ed Meyertholen
Ionis and Roche (two pharma companies) issued a press release with regard to a clinical trial using ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Dad and KD (in Spouses & Significant Others) by jr_cf
My father (65yr old male) was diagnosed with KD approx 7 years ago. Unfortunately, around the same t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  SW Denver anyone? (in Open Topic) by Bob Heitzman
I'm considering moving to SW Denver (Lakewood) to be near one of my sons in Evergreen and his family......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Bob Heitzman
Has anyone tried EMS to help deal with the muscular atrophy? Anyone have insight into if EMS may be......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Creatine Suppliments. (in Open Topic) by graham lee
Has anyone any information on 'Creatine Suppliments' I have made recent contact with a man who has K......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Knees Buckling (in Exercise Discussion) by Bruce
For several years my knees have buckled without any warning. Several times I have broken bones in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Products (in Food and Nutrition) by Lori Ryan-Salopek
I have taken the Juice-Plus supps. and like the idea that there is a vegetable blend, berry blend, a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Yoga and KDA (in Exercise Discussion) by Naomi
I am a yoga instructor and I would to make sure I offer challenging and appropriate sessions to a ne......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  Curcumin / ASC-J9 and related items (in Medications and Therapies) by Dan B
Most people reading this forum have heard of the research being done by Dr. Chawnshang Chang on the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Unusual problem! (in Open Topic) by Elvira
Hi! I have a rather strange problem. Want to know if anyone here recognise it. First a little about ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Ventilator Use (in 'Carrier' Discussions) by Kacie
Hello, My name is Kacie, I am a carrier. My father has KD and is almost 67. This past summer he ha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > 'Carrier' Discussions

Discussion Topic  Sleep apnea - Bi-Pap machine (in Open Topic) by Cam
I’ve been trying to minimize my constant fatigue for a long time, and came to sleep apnea. I have n......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Hello Everyone (in 'Carrier' Discussions) by Elvira
Hi! My name is Elvira and I live in Sweden. My father has Kennedys disease and me and my sister are ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > 'Carrier' Discussions

Discussion Topic  Could genome editing be a cure? (in Medications and Therapies) by C.D.Harris
Read this article today in our Sunday paper. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  CRISPR research in Muscular Dystrophy (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Early correct diagnosis? (in Open Topic) by Mickle Spiffy
My first diagnosis was ALS, then CIDP then some slow, not yet understood form of ALS until they hit ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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