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Discussion Topic  Husband has pain in his heels (in Open Topic) by Marsia Kotte
Does anyone have pain in their heels? Do you have any remedies for it?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Coping (in Open Topic) by Nick0651
Hi everyone, I’m new here. My name is Nick, and I’m newly diagnosed with Kennedy’s. A little back......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  A few questions (in Open Topic) by pianokeys
Hello, I have read that some people with Kennedys disease sometimes get misdiagnosed with ALS. How c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  I don't think I get it (in Open Topic) by lmiller
My dad had an ALS diagnosis for almost 2 yrs and he called to say that he has a Kennedy's diagnosis ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Arginine as potential disease-modifying drug (in Discussion of Papers) by Ben
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  Pillow recommendations? (in Open Topic) by Cam
I'm having difficulty supporting my neck comfortably at night; any recommendations on pillows that w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Question about CCRCs and Lifecare Communities (in Open Topic) by Dan B
Has any had the experience of applying to a Continuing Care Retirement Community (CCRC) or Lifecare ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  laryngospasm (dry Drowning) Choking (in Open Topic) by KDA Adminstrator
I found a good site and explanation for this common symptom that we with KD have often. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  First use of CRISPR to edit genes in the human body (in Open Topic) by Dan B
This is exciting: the news story reports the first use of CRISPR to edit genes while still inside th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Jaw locking (in Open Topic) by Lolo
My husband is having issues with what he is calling his jaw locking making is very difficult and pai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Developing an antisense therapy approach for Kennedy’s disease (in Open Topic) by Jin
I entered the Kennedy Disease Association's Facebook and I have one document that is posted on Febru......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Researchers discover how cells clear misfolded proteins from tissues (in Discussion of Papers) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Discussion Topic  facial muscle weakness (in Open Topic) by jahradental
does anyone here have signs and symptoms of facial muscle weakness and been to any dental hospital f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  neck collar, smart exercise with diagram/photos (in Open Topic) by Christina
Hi, My dad was diagnosed with KD late last year at age 76. His main symptom is head drop syndrome ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Successful use of gene scissors to shorten defective gene (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Vibration? (in Open Topic) by Brad0608
Hey guys how is everyone doing was wondering started feeling vibration in left leg I guess my questi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Fasting and autophagy (in Open Topic) by Dan B
There was a discussion at the KD group on FB about autophagy stimulated by fasting, and its role in ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  KD on Reddit (in Open Topic) by Ben
Hi all! After realizing I'm missing out on discussions on Facebook and that perhaps this forum doe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  New on board (in Open Topic) by Hunor
Heya Guys ! Iam Hunor from Hungary,my symptoms started since one year ago with calf fasciculation, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Merry Christmas and a Happy New Year! (in Open Topic) by Cam
To all the forum....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  CRISPR improving all the time. (in Open Topic) by Cam
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Foods that make me choke (in Food and Nutrition) by Stan
We got on the subject of foods and choking during a recent chat and I was asked to put my list on th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  Feeding tube (in Open Topic) by Cam
Pulmonologist is making noises about a feeding tube. Anyone have experience they care to share? (pm......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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Tel: 1-855-532-7762
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