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Discussion Topic  RE: Presentation (in Open Topic) by Bruce
Fernando, thank you for your kind comments. If I can make a difference in someone's life, it is wor......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Presentation (in Open Topic) by Bruce
Fernando, since Kennedy's Disease is a lower motor neuron disease, cognitive issues are not normally......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: A change in lifestyle (in Food and Nutrition) by Bruce
Jim, Thanks for sharing your stories. I cannot tell you how happy I am that you took the initiative......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Benefits of Physical Therapy (in Exercise Discussion) by Bruce
Jim, what a great post. Thank you for sharing. It sounds like things are going well. That 70% rul......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Trigger Words (in Open Topic) by Bruce
Jim, sorry for the problem. I will contact Terry and see if he or I can figure it out. How are you......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Steroids - (in Open Topic) by Bruce
Fer, the initial testing on IGF-1 (for muscles) was positive. NIH is conducting additional tests on......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Statins (in Medications and Therapies) by Bruce
Dave, thanks for sharing your experiences. Mike, thanks for posting this subject. It is an interes......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bruce
Pete, thanks for sharing. It is difficult to say what happened. If allergies, a cold, or the flu w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bruce
Dan did an excellent job of explaining the situation as well as provide helpful suggestions. Dry-dr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Bruce
Sesara, it is tough being a parent. I have always said that "knowledge is power." With better know......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Bruce
Great looking boy! If there is a benefit in having KD it is that onset will not begin until adultho......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: My son will have Kennedy's (in Open Topic) by Bruce
Thank you for sharing your thoughts. Yes, we continue to live with hope. Now, if we can push S......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: reclast (in Medications and Therapies) by Bruce
Allan, thanks for sharing this experience. As you said, not everyone has this experience, but it is......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: reclast (in Medications and Therapies) by Bruce
My doctor also recommended Reclast, but I declined because of this potential side effect. I would a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Face Sag (in Open Topic) by Bruce
John, I am not aware of eyelid droop as a symptom. That does not mean it cannot happer, however. I......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: SBMA and emotional outbursts (PBA, IEED) -- need your help! (in Open Topic) by Bruce
Good Morning, I am not aware that unexplained emotional outbursts are a symptom of KD. I have se......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Bruce
Mike, NIH provided a grant to further this research. The complete article is on the KDA website und......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Curcumin / ASC-J9 and related items (in Medications and Therapies) by Bruce
James. thanks for sharing. Yes, please keep us advised of how things are going and what your doctor......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Thinking of my grandfather (in Open Topic) by Bruce
Jim, thanks for the reply. Congratulations on the weight loss (and keeping it off) and the continue......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Thinking of my grandfather (in Open Topic) by Bruce
Jim, it is good to hear from you. Thanks for sharing your story about your grandfather. Recently......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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