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Inconsistant weakness (in Open Topic) by BC Paul As Bruce and John B have said, it seems that its not so much strength but stamina and fatigue that v...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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First Timer.. (in Spouses & Significant Others) by BC PaulOne of the most important things to bear in mind is to "Treat the Symptoms". While the blood test fo...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others
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Newborn screening for NMD (in Open Topic) by BC PaulI'm not advocating for or against, the link was sent to me as a regular monthly article. The costs ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Newborn screening for NMD (in Open Topic) by BC PaulAs this is already being discussed legislatively for other NMD's, maybe its time to start the discus...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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CPAP (in Open Topic) by BC PaulJust a followup, am now using a foam wedge (which replicates Bob's suggestion above), but when trave...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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CPAP (in Open Topic) by BC PaulYour comments Bob, may have been right on the mark. As part of the ongoing search for answers, I ha...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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CPAP (in Open Topic) by BC PaulThanks Lolo, getting rid of the machine was a joint decision. It was a trial which sent a wireless ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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CPAP (in Open Topic) by BC Paulthanks Bob, I've gotten rid of the machine until I can be seen by a respirologist, so I am contented...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic CPAP (in Open Topic) by BC PaulI am currently undergoing a CPAP trial (I have been diagnosed with both obstructive and central slee...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Vagus Nerve (in Open Topic) by BC PaulThanks for that Fisher, it seems that the Vagus nerve is involved with my most troubling symptoms, a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Lowering CPK (in Open Topic) by BC PaulI had been waiting for results of the exercise trial Dan, so was surprised to see they are still rec...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Curcumin / ASC-J9 and related items (in Medications and Therapies) by BC PaulI agree with you Dan and could add other drugs too. What really bothers me is that no one seems inte...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies
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Dutasteride; Is it working for you? (in Medications and Therapies) by BC PaulIn Dec 2012 Kenneth H. Fischbeck, published 'Developing treatment for spinal and bulbar muscular atr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies
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Slowing the progression of Kennedy's Disease (in Open Topic) by BC PaulI believe there was a 'tolerability' trial of Arimoclomol for Inclusion Body Myositis which showed b...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Slowing the progression of Kennedy's Disease (in Open Topic) by BC PaulGreat news Bruce; I just finished reading the complete study, and it has some of the best explanatio...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Is Kennedy's an MND or not? (in Open Topic) by BC Paulyou may have to suffer through some event, or have your doctor or employer declare you unfit to work...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Is Kennedy's an MND or not? (in Open Topic) by BC PaulThe insurer needs a date of diagnosis, which it seems your doctor has confused with 'date contracted...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Medic Alert (in Open Topic) by BC PaulThanks Dan; got the card in my wallet but still uncertain what to put on the bracelet. Because it i...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Medic Alert (in Open Topic) by BC PaulI occasionally stumble, have been known to fall; my speech is sometimes slurred, and at times can't ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Vitamin D Supplement (in Food and Nutrition) by BC PaulI too had/have a very low level of Vitamin D(39); when researching this, I came across this study, t...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition | » Refine Search » New Search |
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Kennedy's Disease Association
1445 Woodmont Ln NW #1805 GA 30318
Tel: 1-855-532-7762
Email: info@kennedysdisease.org