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Discussion Topic  RE: Conference materials? (in Open Topic) by C.D.Harris
Thanks very much!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Conference materials? (in Open Topic) by C.D.Harris
I attended the conference a few weeks ago and thought I heard that the slides and other materials us......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by C.D.Harris
Everything always seems to be years away. Maybe our kids or grand-kids will benefit. Thanks....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by C.D.Harris
Thanks for the information. I hope they start asking for volunteers soon....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Could genome editing be a cure? (in Medications and Therapies) by C.D.Harris
Read this article today in our Sunday paper. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Growth Hormone to Trigger IGF-1 Production (in Medications and Therapies) by C.D.Harris
I asked my regular doctor about it and he said I needed to speak with my neurologist. Unfortunately,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Any reason not to take Requip? (in Medications and Therapies) by C.D.Harris
I feel the same way about taking medication. I suspect the RLS is a symptom of my KD and I doubt th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Any reason not to take Requip? (in Medications and Therapies) by C.D.Harris
My pulmonogist had me take a sleep test as he thought I might have Sleep Apnea and my breathing has ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Novartis Trial? (in Open Topic) by C.D.Harris
Thanks very much. I will happily volunteer for Phase B....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Novartis Trial? (in Open Topic) by C.D.Harris
Does anyone know how the Novartis clinical trial (https://clinicaltrials.gov/ct2/show/study/NCT02024......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: non-alcoholic steatohepatitis (in Open Topic) by C.D.Harris
When I was at the NIH for the conclusion of my participation in the exercise study, they did an ultr......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Cure for motor neurone disease? (in Open Topic) by C.D.Harris
I saw this article today ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Nuedexta study for ALS (in Medications and Therapies) by C.D.Harris
I have been taking Nuedexta for a month. I got my neurologist to prescribe it. The Nuedexta website ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Nuedexta study for ALS (in Medications and Therapies) by C.D.Harris
The Micromedex used by pharmacists lists these as the side effects of Nuedexta: >>>>>......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Nuedexta study for ALS (in Medications and Therapies) by C.D.Harris
My swallowing and voice have been adversely affected by KD, so I am interested in anything that migh......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  Nuedexta study for ALS (in Medications and Therapies) by C.D.Harris
Was just reading about this study for ALS "to determine if Nuedexta improves bulbar functions, inclu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  "Scientists ‘edit’ DNA to correct cure diseases" (in Open Topic) by C.D.Harris
This sounds very promising. It could be a cure for KD and many other genetic diseases. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: NIH Announces New Clinical Trial (in Open Topic) by C.D.Harris
Has anyone been able to sign up for this study? I called the Novartis number on the ClinicalTrials.g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What about Low Dose Naltrexone? (in Medications and Therapies) by C.D.Harris
Thanks very much. The reports I read were anecdotal, but sounded encouraging....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  What about Low Dose Naltrexone? (in Medications and Therapies) by C.D.Harris
I have been reading good things about Low Dose Naltrexone (LDN) being used to treat MS and ALS. Repo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies


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