Home Login/Join My Space Help Members Forums Search Today's Active Topics New Since Last Visit
Page 1 2 
Go
New
Find
Tools
Search Results: (23 matches) New Search Login/Join 

Discussion Topic  RE: Preimplantation Genetic Diagnosis (PGD) (in Open Topic) by raxel19
Hiya Henry, Congrats on wanting to start a family as well as trying to mitigate the spread of the di......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Preimplantation Genetic Diagnosis (PGD) (in Open Topic) by raxel19
Thanks so much for replying, Deb. My husband just got diagnosed and we still would like to have chi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Preimplantation Genetic Diagnosis (PGD) (in Open Topic) by raxel19
Hi All, Apologies that I am posting a question about IVF here but the Open Topic section seems to g......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 25 years old high CPK level (in Open Topic) by raxel19
Hi Henry, I would just like to add regarding the child factor, you most likely needn't worry. Most......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  TNT chip a pathway for treatment/cure? (in Open Topic) by raxel19
Very incredible article from USA Today about Ohio University's development of a chip that delivers v......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Conference updates from November? (in Open Topic) by raxel19
Hi there, It's great to see the presentations from the conference in November up on the site. Howe......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Walking on the beach/sand (in Mobility Aids) by raxel19
Thanks so much, gentlemen. Great to know about the Mobi-Chair. I found this to put on the end of m......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Walking on the beach/sand (in Mobility Aids) by raxel19
Hi everyone, This is the first summer that my husband hasn't been able to walk to the ocean as the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  Apps for Clinical Research (in Open Topic) by raxel19
Hi All, I thought this may be of interest to a lot of your out there, and hopefully our "medical te......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Research funds (in Open Topic) by raxel19
This is super, Jon. Thank you for posting. I have put it on Facebook and also on Twitter. The mor......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: San Diego conference (in Open Topic) by raxel19
Thanks so much, Ed!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  San Diego conference (in Open Topic) by raxel19
Hi Everyone, Apologies if this has been asked somewhere else on the site, but will there be any inf......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lowering CPK (in Open Topic) by raxel19
Our neurologist is having us meet with the Director of Rehabilitation at Cornell to go over the best......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Lowering CPK (in Open Topic) by raxel19
Hi there, Pardon me if you see me on this forum asking questions a lot. My husband and I just got ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by raxel19
Right, great points. Will make sure we have that....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by raxel19
Thank you, Bruce. My husband did the DNA test and it was confirmed he had it but the doctor didn't ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Please allow ,me to introduce my self..... (in Open Topic) by raxel19
Hi there, Just curious of the importance of knowing how many repeats you have. Is knowing that hel......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Egg selection to have KD free children (in Carrier Discussion) by raxel19
Hi there, I am just curious why this procedure isn't more public knowledge? If it was, I would ass......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: IGF1 SBMA study results (in Medications and Therapies) by raxel19
Thank you, Ed! I have seen this article and am hopeful we will have more updates sooner than later!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: IGF1 SBMA study results (in Medications and Therapies) by raxel19
Understood. Sorry for an confusion. I specifically asked Dr.Chang about ASC-J9 for Kennedy's so as......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies


» Refine Search
» New Search

  Powered by Social Strata Page 1 2  


Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org