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![]() Hi Jim, I can relate, big time! I never knew one day to the next, if I could complete the same task...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() My thoughts. If you are feeling neck weakness, use one for safety. I have used a Headmaster brace f...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() I am in Shock, to say the least! I realize I'm an exception to the so called, "normally" slow progr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Well Brad, good questions. Unfortunatey there are no definate answers. I had hand tremors start in ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Hi, Jim. I'm sure you have lots of questions. You'll find the answers on this site. If not, just ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() I just tried the whistle and still can but very faint. Twitching legs perfectly normal. Eventually ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() My therapist at the ALS clinic I go to gave me a collar called The Headmaster. It is strong but als...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility ![]() The Quantum does look impressive. The off road prt looks great! I was fourtunate(canadian spelling,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids ![]() Thanks for your thoughts Bruce and Cam. I forgot to say that while I was in ICU at NIH in Bethesda,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Just wanted to update again. I had to quit working as of April 2007. My talking, breathing trouble...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Just wanted to give an update. I requested a transfer from my employer and am now in Winnipeg. I n...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Hey Cam. Thanks for the reply. I'm trying to figure out the right time to go(kids schooling, where...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Thanks for the reply Terry. The fall of 2004 was when I first noticed the problem but, I did have c...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() I was diagnosed with KD on Feb. 6th/06. I've been doing lots of reading since! I'm trying to get a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Hi Jon, I was diagnosed Feb/06, with walking symptoms a year earlier. I turned 41 this fall and my ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() I got my letter on the 9th. Got my call back late on the 12th. Scheduled to go in October. If I te...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic ![]() Has anyone received their letters yet? The e-mail I received said they would be out last week. I'm...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic | » Refine Search » New Search |
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Kennedy's Disease Association
1445 Woodmont Ln NW #1805 GA 30318
Tel: 1-855-532-7762
Email: info@kennedysdisease.org