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Symptom Progression - Arm Weakness (in Open Topic) by Darwyn Hi Jim, I can relate, big time! I never knew one day to the next, if I could complete the same task...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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How are you dealing with Kennedy's Disease in your life? (in Open Topic) by DarwynMy thoughts. If you are feeling neck weakness, use one for safety. I have used a Headmaster brace f...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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How are you dealing with Kennedy's Disease in your life? (in Open Topic) by DarwynI am in Shock, to say the least! I realize I'm an exception to the so called, "normally" slow progr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Advice for Younger Brother (in Open Topic) by DarwynWell Brad, good questions. Unfortunatey there are no definate answers. I had hand tremors start in ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Yet another new guy (in Open Topic) by DarwynHi, Jim. I'm sure you have lots of questions. You'll find the answers on this site. If not, just ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Yet another new guy (in Open Topic) by DarwynI just tried the whistle and still can but very faint. Twitching legs perfectly normal. Eventually ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Looking For A Neck Brace (in Accesibility) by DarwynMy therapist at the ALS clinic I go to gave me a collar called The Headmaster. It is strong but als...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility
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Power Chair/Scooter or Manual Wheelchair (in Mobility Aids) by DarwynThe Quantum does look impressive. The off road prt looks great! I was fourtunate(canadian spelling,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids
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Recently Diagnosed (in Open Topic) by DarwynThanks for your thoughts Bruce and Cam. I forgot to say that while I was in ICU at NIH in Bethesda,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Recently Diagnosed (in Open Topic) by DarwynJust wanted to update again. I had to quit working as of April 2007. My talking, breathing trouble...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Recently Diagnosed (in Open Topic) by DarwynJust wanted to give an update. I requested a transfer from my employer and am now in Winnipeg. I n...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Recently Diagnosed (in Open Topic) by DarwynHey Cam. Thanks for the reply. I'm trying to figure out the right time to go(kids schooling, where...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Recently Diagnosed (in Open Topic) by DarwynThanks for the reply Terry. The fall of 2004 was when I first noticed the problem but, I did have c...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Recently Diagnosed (in Open Topic) by DarwynI was diagnosed with KD on Feb. 6th/06. I've been doing lots of reading since! I'm trying to get a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Mobility Progression (in Open Topic) by DarwynHi Jon, I was diagnosed Feb/06, with walking symptoms a year earlier. I turned 41 this fall and my ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Trial Letters (in Open Topic) by DarwynI got my letter on the 9th. Got my call back late on the 12th. Scheduled to go in October. If I te...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Trial Letters (in Open Topic) by DarwynHas anyone received their letters yet? The e-mail I received said they would be out last week. I'm...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic | » Refine Search » New Search |
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Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614
Tel: 1-855-532-7762
Email: info@kennedysdisease.org