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Discussion Topic  RE: Headed to NIH tomorrow (in Open Topic) by Robbie2
I'm so glad to hear your first experience there was so positive! Good luck and thank you for partici......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Sadly (in Open Topic) by Robbie2
Thank you all very much for your kind condolences, both here, and also following Terry's obituary no......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Sadly (in Open Topic) by Robbie2
My husband, Terry Bobby, lost his battle with cancer last Tuesday, October 9th. He was diagnosed wit......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Diabetes (in Open Topic) by Robbie2
I am in agreement with Bruce, and as a retired RN, I know that the sucrose in honey and the fructose......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any other Cluster Migraine sufferers? (in Open Topic) by Robbie2
I didn't think it was likely that there was a link, but thought it was worth asking about. They (clu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Any other Cluster Migraine sufferers? (in Open Topic) by Robbie2
My husband, who was diagnosed with KD in 2006, has suffered from cluster migraine headaches every tw......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Raise Funds for KDA Each Time You Use This Search Engine (in Fundraising Discussion) by Robbie2
I am so disappointed that this fund-raising venue isn't being used to raise moneys for the KDA. I kn......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Fundraising Discussion

Discussion Topic  RE: Is pneumonia vaccine recommended for people with SBMA? (in Medications and Therapies) by Robbie2
As a retired RN with a KD positive spouse, I say, 'yes!' definitely recommended. And our son, who is......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Happy Holidays (in Open Topic) by Robbie2
Thank you Bruce! We would like to also wish everyone in our KDA community Seasons Greetings, a very ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Very good Bruce! Thanks for providing us with an explanation we can all, hopefully, relate to and ma......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Good Luck with your new blog Bruce! I will be following along with interest ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Thanks for enquiring after my husband, Terry ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
RE: FUTURE CLINICAL TRIALS This is exciting news Bruce! Looking forward to reading more about it in......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
re: THE SLIDE Welcome Bruce! You will find good information and great support here : ) Your Uncle T......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Just a quick update on my husband Terry's progress. He came through a very long (6 1/2 hour) surgery......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Yes, there is definitely apprehension, but we are staying positive and will be glad to have the surg......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Yes, they are aware, thanks Bob....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Robbie2
Thank you all for your kindness and encouragement. It is so appreciated and brings comfort and stren......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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