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Discussion Topic  RE: A great result for Huntington's Disease (in Open Topic) by Ed Meyertholen
Bob, These are great points and certainly indicate that there are issues to be resolved before an e......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  A great result for Huntington's Disease (in Open Topic) by Ed Meyertholen
Ionis and Roche (two pharma companies) issued a press release with regard to a clinical trial using ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anybody out there? (in Carrier Discussion) by Ed Meyertholen
Let me piggy back on Bruce's post. It is quite common for carriers to have 'minor' symptoms. This ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by Ed Meyertholen
C.D. They are several years away from humans, I expect. There is, however, a new trial for Hungtin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Could genome editing be a cure? (in Medications and Therapies) by Ed Meyertholen
There was a study using Duchenne's Muscular Dytrophy mice which used CRISPR to alter the genes in ad......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Ed Meyertholen
The KD group in Japan just published a study on exercises that they found can improve swallowing in ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Tremors Treatment (in Medications and Therapies) by Ed Meyertholen
Ron, There is no relationship between KD and Parkinson's Disease. You mentioned earlier in this t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Avodart Justification for SBMA (in Medications and Therapies) by Ed Meyertholen
Bob, There is no other clinical justification for dutasteride than the clinical trial done at NIH. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Mutant Protein in Muscle Linked to Neuromuscular Disorder (in Open Topic) by Ed Meyertholen
Hi Ahmed, I will try to give answers for you. I think that it is safe to say that neither the tria......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Nuedexta study for ALS (in Medications and Therapies) by Ed Meyertholen
HI All, I do not have anything significant to add in regard to nuedexta - other than there is no cu......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Ed Meyertholen
Have you seen the KDA webpage on donations? ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Hypogonadism in female carriers (in Carrier Discussion) by Ed Meyertholen
HI Maria, I contacted one of the neurologists who knows about KD and he indicated that he has not s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: San Diego conference (in Open Topic) by Ed Meyertholen
There is some info on the most recent newsletter - ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anyone heard of Wnt7a? (in Medications and Therapies) by Ed Meyertholen
Cam, It is too early to really determine if Wnt7a will be a treatment for diseases such as KD. The......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Selective Androgen Receptor Modulator(SARM)? (in Medications and Therapies) by Ed Meyertholen
Hi CD, SARMs are molecules that activate the androgen receptor, but do so selectively. The general......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: IGF1 SBMA study results (in Medications and Therapies) by Ed Meyertholen
No reason to be sorry, Raxel19, we all want this to proceed!! I am not sure what Dr. Chang was re......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: IGF1 SBMA study results (in Medications and Therapies) by Ed Meyertholen
There is a trial dealing with ASC-J9 as a topical cream for acne which used humans. You can search ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: IGF1 SBMA study results (in Medications and Therapies) by Ed Meyertholen
HI raxel19 - I do not believe that there are human trials of ASC-J9 at this time. The only ongoing ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Fertility (in Open Topic) by Ed Meyertholen
Generally, I think you will find that most of the men with KD are fertile and have children - I have......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Erythema Nodosum (in Open Topic) by Ed Meyertholen
I read the high estorgen/KD like symptoms paper - it appears that the individual is not in good cond......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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