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Discussion Topic  RE: Jaw locking (in Open Topic) by Lolo
Thank you both, I will show these replies to him so he can see your ideas. Hopefully a different pil......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Jaw locking (in Open Topic) by Lolo
My husband is having issues with what he is calling his jaw locking making is very difficult and pai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lifespan with Kennedy's Disease (in Spouses & Significant Others) by Lolo
Graham, is there any feeling of uneasiness or unsettled feeling using that machine? My husband disli......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Lifespan with Kennedy's Disease (in Spouses & Significant Others) by Lolo
My husbands' uncle passed away last month at age 70. We were told he had walking pneumonia which he ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
Bob fell 2 months ago, broke his leg in three places! He wants his entire body donated to research s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
Bruce, I'm not asking for KDA to pick up the cost, I am surprised there is one. Are you saying KDA......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
I'm surprised to see there is a cost to the family to donate, any idea of the costs? Being that most......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
Thank you guys for responding! This wasn't a subject I really wanted to post as I didn't want to up......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Is there a place to donate your body for KD research after death? (in Open Topic) by Lolo
My husband and I have been discussing what to do with each other upon our deaths. We both want crema......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Hotshot (in Food and Nutrition) by Lolo
Pay attention to body fatigue, when your legs hurt from walking, stop and rest. when legs start to......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Hotshot (in Food and Nutrition) by Lolo
This is Bob, I have KD, and went through that 11 years ago. Suggest you ask for a script of tiazadi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Swallowing exercise? (in Exercise Discussion) by Lolo
Recently it seems like my husband is having a harder and harder time chewing. He loves a good steak ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: The new KDA WEBSITE is up and running (in Open Topic) by Lolo
Bruce, New instructions worked just fine! Is this site going to be closed soon? We will no longer be......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: The new KDA WEBSITE is up and running (in Open Topic) by Lolo
Bruce, I didn't get an email, should I re-register?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Link between kennedy's disease and osteoporosis? (in Open Topic) by Lolo
My husband has severe Osteoporosis, found out right before the KD diagnosis as he feel and broke his......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How to Deal With Loneliness (in Open Topic) by Lolo
When I left home, I moved about 2100 miles away! My 1st 8 Christmas' I was single and very sad, no f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Right Side Sagging (in Open Topic) by Lolo
Doubt it is much to worry about as us ladies are lopsided all the time. Many woman have mis-matched ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Melatonin and AR in SBMA (in Food and Nutrition) by Lolo
Dan, you were right in correcting me. I agree, one should discuss all meds and OTC with their Dr. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: CPAP (in Open Topic) by Lolo
At least you have a good humor!! Wishing you the best and hope it all gets fixed quickly...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: CPAP (in Open Topic) by Lolo
Not sure if it is smart to ditch the Cpap before seeing your Dr. I have sleep apnea (not KD, my spou......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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