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Discussion Topic  RE: Steroids (in Medications and Therapies) by Bruce
Mike, thanks for sharing your story. Yes, Prednisone is something I cannot take either. I found ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
Below is an email I received today. Those of us living with Kennedy's Disease reach out in many dif......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bruce
Good afternoon, we are snowed in again and cannot go anywhere for a few days. Michael Bingham sen......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: the oil company transfer me more hard position even I say my KD condition (in Open Topic) by Bruce
Leon, thanks for keeping us informed. I hope it all works out for you....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: the oil company transfer me more hard position even I say my KD condition (in Open Topic) by Bruce
Leon, Cam has given some good advice. What is your supervisor's take on this? Now that you and y......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Any other Cluster Migraine sufferers? (in Open Topic) by Bruce
Robbie, I have not heard of any association between the two. My sister-in-law has them also and she......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: I have suspected KD for a long time. I'd love to hear your thoughts (in Open Topic) by Bruce
Greg, not having an elevated CPK does raise a flag. Mine and many others I know had much higher tha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: I have suspected KD for a long time. I'd love to hear your thoughts (in Open Topic) by Bruce
Greg, thanks for sharing. Because KD impacts men in various ways, it is difficult to say for sure. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fell Yesterday (in Open Topic) by Bruce
I have had this experience many times ... especially while working. Most of the time one knee will ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Interesting visit with Mayo (in Open Topic) by Bruce
Lori, it has been explained to me that carries with "two" defective "X" chromosomes have most of the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Question about back braces / lumbosacral orthosis (in Accesibility) by Bruce
Dan, back and stomach muscles weaken as the disease progresses. I have really noticed a difference ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Any females that have this? (in Open Topic) by Bruce
Dan, that is really interesting. Thanks for sharing....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Vitamin D Supplement (in Food and Nutrition) by Bruce
Dave, I am sorry that I missed your question earlier. Yes, I take a "D" supplement and have for a c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Steroids - (in Open Topic) by Bruce
Monte, I am sorry to hear of your loss. Thank you for your investigation of this. You just never k......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: eLEGS from Berkeley Bionics (in Mobility Aids) by Bruce
Dan, good stuff. Besides HAL and the Toyota and Honda devices, here is another potential product. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: KDA Conference? (in Open Topic) by Bruce
Tony, Stan is correct about information being made available in the KDA Holiday Newsletter. Terry a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Castration Trials? (in Open Topic) by Bruce
Leon, thanks for sharing this information. It will be interesting to see whether this helps....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Aspiration at night (in Open Topic) by Bruce
Yes, this is a problem ... and frustration. I am a back sleeper, so I have to keep myself elevated ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Fasciculation? (in Open Topic) by Bruce
Fisher, thanks for reading my blog and your kind comments. Since you are a reader, you know my phil......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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