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Discussion Topic  Support the CuresNOW bill today (in Open Topic) by Bruce
We need your help. I have written about this proposed bill several times over the past year. We were......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cortisol (in Open Topic) by Bruce
Dan, I keep on getting a content not found message when I click on the link. I found it with a sea......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cortisol (in Open Topic) by Bruce
Mike, a good question. My level ranged from 88-102 over the last five years with March's number bein......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: It's a scooter, no it's a chair, no ... (in Accesibility) by Bruce
Bob, the seat height was the first thought I had. In the later stages, it wouldn't be much good for ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  It's a scooter, no it's a chair, no ... (in Accesibility) by Bruce
I received the following email today. The eFoldi is an interesting adaption of the carry-on luggage.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: medicación (in Spanish Discussion) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spanish Discussion

Discussion Topic  RE: Terry Waite (in Open Topic) by Bruce
Terry was the reason I joined the KDA. I found him online and we communicated several times via emai......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Terry Waite (in Open Topic) by Bruce
Lou Tudor posted the following message last night: Terry Waite has left this world a better place. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Terry Waite (in Open Topic) by Bruce
Lou Tudor, the president of the KDA posted this on Facebook yesterday. We are deeply saddened to he......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: The message is slowly getting out (in Open Topic) by Bruce
I came across this story today. It again reflects the personal hardships of those living with Kenned......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: The message is slowly getting out (in Open Topic) by Bruce
Here is an ongoing story about a well-known actor in the Orient who has learned to live with Kennedy......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  The message is slowly getting out (in Open Topic) by Bruce
For so many years, the topic of Kennedy's Disease never made the news. Over the last several years, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Link between kennedy's disease and osteoporosis? (in Open Topic) by Bruce
Mark, thanks for sharing. I have had several broken bones as a result of falls. Fortunately, they ha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anyone in the San Francisco Bay Area living with KD? (in Open Topic) by Bruce
Ralph, there are several men living with Kennedy's Disease in California. Several have published the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bruce
WOW! Bob, it appears this all happened pretty quickly. Did anything happen in the last couple of mo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bruce
Bob,maybe I don't understand your situation. I park the chair alongside the bed - sides almost touch......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bruce
Bob, what helped me was to raise the bed. I added leg extensions and now it is high enough for me to......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Anyone doing CRISPR research in Kennedy's? (in Open Topic) by Bruce
A good short explanation on a CBS News report: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Free Joey Lift Available (in Accesibility) by Bruce
Do you live within driving distance of the Ohio area? We have a member who is donating a Bruno Joey......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Anyone with knowledge in Melbourne Australia (in Open Topic) by Bruce
Trent, if you find a doctor you like, see if we can add his name and contact information to our Doct......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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Tel: 1-855-532-7762
Email: info@kennedysdisease.org