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Discussion Topic  RE: sore throat (in Open Topic) by Bruce
I can only reply using my personal experience and from comments from several others with KD. A sore......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: KD diagonostic (in Open Topic) by Bruce
I asked Dr. Taylor from the University of Pennsylvania to respond to your questions. His comments a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Potential Carrier requires information (in Carrier Discussion) by Bruce
Yes, it is possible, but usually the symptoms are far less severe and appear later in life. My moth......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: secondary sexual characteristics, is that related? (in Open Topic) by Bruce
Frank, I contacted Dr. Taylor and his response is below: "They may be related. Reduced secondary s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: chocking (in Open Topic) by Bruce
The biggest issue is too large a bite or too large a piece of meat. Cutting the pieces into much sm......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Supporting a Husband whose Family is in DENIAL... (in Spouses & Significant Others) by Bruce
Lois, thanks for sharing. I can understand your frustration and disappointment. Most everyone (fam......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Interesting article in MDA's website (in Medications and Therapies) by Bruce
Thank you for the information. I wrote Dr. Fischbeck and asked what he knew about this drug. His r......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Horrible Frustration/Depression/You Name it (in Open Topic) by Bruce
Finding a doctor that is familiar with KD is difficult. The DNA blood test for KD is the only way t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Power Chair/Scooter or Manual Wheelchair (in Mobility Aids) by Bruce
If Andy needs something for an apartment or home, do not buy a scooter. Find an electric wheelchair......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: More Frustration with Neurologist! (in Open Topic) by Bruce
Steve, thanks for taking the time to vent. Sometimes you just need to let it all come out. Many of......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Some advice please (in Open Topic) by Bruce
I have taken this from our web site. It pretty much says the same thing written in the previous pos......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Some advice please (in Open Topic) by Bruce
You can also look on our website (http://www.kennedysdisease.org/about_counseling.html) and it expla......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Diagnosis and Dr. Frustration (in Open Topic) by Bruce
The test for KD is a DNA test and very specific. It checks for the number of CAG repeats. If your ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Sleep Apnea and KD? Is there a connection? (in Open Topic) by Bruce
I am not a doctor, but I have asked the question of my doctor and he does not directly associate sle......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Mobility Progression (in Open Topic) by Bruce
There are no set rules or timeline for the progression. I know men that are in wheelchairs in their......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: treatments (in Carrier Discussion) by Bruce
I am not familiar with either of these items. Before taking anything, I would recommend checking wi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Discussion Topic  RE: Tax Season is Upon Us!!! (in Social Secuirty-Disability and Financial Discussion) by Bruce
Bob, I am not certain about your tax question and recommend that you contact the IRS directly for an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Social Secuirty-Disability and Financial Discussion

Discussion Topic  Stress and KD (in Open Topic) by Bruce
I am trying to better understand the effects of stress on people with Kennedy's Disease. I know i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Husband recently diagnosed with KD (in Spouses & Significant Others) by Bruce
Robbie, thanks for sharing your story with us. We (the men) are extremely fortunate to have such lo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Steroids (in Medications and Therapies) by Bruce
Keith, thanks for sharing your experiences. It is important that we all understand what is availabl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies


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Kennedy's Disease Association
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