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Discussion Topic  RE: Request for treatment before disease onset (in Open Topic) by Bruce
Henry, thanks for your inquiry. Cam is giving you good advice. Live your life - do what you enjoy do......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Novartis Trial? (in Open Topic) by Bruce
Well, we are all anxiously awaiting news. It is difficult to have patience when you have a progressi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Avodart Justification for SBMA (in Medications and Therapies) by Bruce
Bob, I did the same as Ed. My doctor didn't hesitate. Dr. Fischbeck at NIH commented to me that the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Cousin has been diagnosed with KD (in Open Topic) by Bruce
Matt, everyone responds differently. One common comment I make is that "not everything is related to......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cousin has been diagnosed with KD (in Open Topic) by Bruce
Matt, you will find some helpful information on our website. Follow the link for the DNA Test inform......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cousin has been diagnosed with KD (in Open Topic) by Bruce
Matt, thanks for sharing your thoughts. If KD runs in your mother's family and you are experiencing......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Social Security - Disability Guide (in Social Secuirty-Disability and Financial Discussion) by Bruce
Gary, yes, some of the older links might be bad since the upgrading of the KDA website. The informa......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Social Secuirty-Disability and Financial Discussion

Discussion Topic  Tis the season ... (in Open Topic) by Bruce
I just received a call from my friend, John Coakley. He had a triple bypass and a stent implanted a ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Neuropathic Itch (in Open Topic) by Bruce
Merry Christmas, Jim I take B12 supplements every day after one of our chat rooms where an NIH doct......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Power Chairs (in Mobility Aids) by Bruce
Bob, thanks for the update. I had a similar experience with the C500. It is a nice chair, but it is ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Lifespan with Kennedy's Disease (in Spouses & Significant Others) by Bruce
Lolo, good advice. We should be mindful of ways to reduce contagions in our life as much as possibl......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Making my own mobility scooters (in Mobility Aids) by Bruce
Todd, thanks for sharing. Innovative, serves the purpose intended, probably a lot of fun to design,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: The new KDA WEBSITE is up and running (in Open Topic) by Bruce
No, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: The new KDA WEBSITE is up and running (in Open Topic) by Bruce
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: The new KDA WEBSITE is up and running (in Open Topic) by Bruce
Lolo, yes, you might need to register again. Sorry for the confusion....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  The new KDA WEBSITE is up and running (in Open Topic) by Bruce
After several months of planning and production, ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Link between kennedy's disease and osteoporosis? (in Open Topic) by Bruce
Yesterday a man wrote to the KDA and asked if we knew of any link between Kennedy's Disease (SBMA) a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Accepting I need a wheelchair. (in Open Topic) by Bruce
Wayne, there are a lot of considerations and your current and near future capabilities are a major f......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Narcotics and Throat Constriction (in Medications and Therapies) by Bruce
DB, thanks for sharing your experiences. I hope others will respond with their experiences....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Cure for motor neurone disease? (in Open Topic) by Bruce
I am not a researcher or doctor, but this is what I know. The research is preliminary and a long w......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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