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Discussion Topic  New Clinical Trial Begins This Month (in Medications and Therapies) by Bruce
The National Institutes of Health (NIH) posted the following on their ‘Clinical Trials’ website. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Is Kennedy's an MND or not? (in Open Topic) by Bruce
Dan, yes, I tried to make a bunch of changes to the Wiki page. But, the author has to approve them.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is Kennedy's an MND or not? (in Open Topic) by Bruce
Dan, Dr. Fischbeck responded to the question you raised last fall. "Sorry for the slow response. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is Kennedy's an MND or not? (in Open Topic) by Bruce
Thanks, Dan, I appreciate you catching this. I sent your comment on to Dr. Fischbeck. How are yo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
Lolo, Since the KDA is not a research facility or involved directly in any research, the role of the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
Lolo, sorry to hear about Bob's fall. I hope the injuries are nothing serious. Reference the costs......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Is there a place to donate your body for KD research after death? (in Open Topic) by Bruce
Lolo, thanks to you and your husband for considering donating tissue for KD research. Ed has provid......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: First Timer.. (in Spouses & Significant Others) by Bruce
Paul makes a good point. I have written about the topic of being cautious about relating every heal......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: First Timer.. (in Spouses & Significant Others) by Bruce
There is a wealth of information on the KDA website and in my Living with Kennedy's Disease blog on ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: Burning pain in heels while sleeping (in Open Topic) by Bruce
Mike, the pain showed up for me about three years ago. I tried massage, but that didn't seem to hel......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Burning pain in heels while sleeping (in Open Topic) by Bruce
Mike, I have experienced this also. My doctor said it was a form of neuropathy. He commented that ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Use of cane causing shoulder weakness? (in Mobility Aids) by Bruce
Mike, a good question. I have found that my weakness is asymmetric. My left shoulder and arm are s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: any advice would be greatly appreciated (in Open Topic) by Bruce
Trent, thanks for contacting the KDA. Symptoms coming on over two days does not seem KD related. K......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Inconsistant weakness (in Open Topic) by Bruce
Cecillo, I don't know your age or age of onset, so I will speak more generally. Yes, your experienc......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by Bruce
John, this might not be associated with KD. Yes, your doctor might be able to help. Do you practic......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Tai chi (in Exercise Discussion) by Bruce
Elisa, if you really tried Tai Chi for any length of time, I will guarantee it is a good workout. M......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Anyone heard of Wnt7a? (in Medications and Therapies) by Bruce
I felt it would be easier for readers to show the McLean's article (link Cam provided). I have also......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Fundraising and Research opportunity in the UK (in Open Topic) by Bruce
Eric, it is always good to hear from you. It seems that the life of a KD'er is often filled with va......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  2013 Research Grant Announcement (in Open Topic) by Bruce
This is the press release by one of the recipients of the 2013 research grants. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: What about Low Dose Naltrexone? (in Medications and Therapies) by Bruce
I asked Ed Meyertholen for his thoughts on this study and below is his reply: There is little evide......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies


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