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Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bob Heitzman
Well, the day I couldn't do my own transfers came sooner rather than later. I've experienced a capab......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bob Heitzman
Someone local mention to me that they have an articulating bed but it does not have the "elevate" ax......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bob Heitzman
Same page - just wonder how folks are performing their transfers. Sliding transfers haven't worked ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bob Heitzman
How do you transfer to the chair? I use a old style walker to stand in between the two surfaces. Wha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  Lifts, Hoists, and Poles. Oh My! (in Accesibility) by Bob Heitzman
I'm planning for the day when I can no longer do self transfers between my various elevated surfaces......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Things that work for me... (in Accesibility) by Bob Heitzman
Thanks! No I haven't tried a tool for buttons - 98% of the time I can still work my buttons....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Things that work for me... (in Accesibility) by Bob Heitzman
Wow, time flies.... I thought I would provide an update and add a trick for eye drops. I've added ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Question about kennedys and CPK levels (in Open Topic) by Bob Heitzman
History of neurological problems would be a strong indicator, but absence would not eliminate KD. Th......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Bob Heitzman
I experienced acid reflux often enough that my docs (including ENT) recommended Prilosec (or its gen......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2 Symptoms (in Open Topic) by Bob Heitzman
RE: out of breath - throw up I believe a common problem with SBMA is GERD - acid-reflux. I know it ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Bob Heitzman
Thanks Dan... My guess is it could easily do damage by overworking muscles and SBMA preventing the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  EMS - Electrical Muscle Stimulation? (in Exercise Discussion) by Bob Heitzman
Has anyone tried EMS to help deal with the muscular atrophy? Anyone have insight into if EMS may be......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Methycobal (Methycobalmine) B12 - Any experience? (in Medications and Therapies) by Bob Heitzman
B12 It is pretty common to be tested for B-12 on occasion and add a supplement to bring it up if low......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: just wanna ask (in Open Topic) by Bob Heitzman
RE: repeated testing I'd suggest you seek out another doc. Other than acting as a clue to get start......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: just wanna ask (in Open Topic) by Bob Heitzman
I assume " bcomolex " is B-Complex If so see other recent post on avoiding high does B6. I can't s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Avodart Justification for SBMA (in Medications and Therapies) by Bob Heitzman
My insurance Blue Cross/CalPers/CVS is trying to push me to a "generic" for Avodart - Finasteride. T......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Anyone seen a Honda Uni-Cub? (in Mobility Aids) by Bob Heitzman
FYI a seat can be added to the Segway. I meet a person with limited mobility using a Segway as an al......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Power Chairs (in Mobility Aids) by Bob Heitzman
I finally looked into several options and wound up replacing my used 2006 Permobil C300 with a 2014 ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Link between kennedy's disease and osteoporosis? (in Open Topic) by Bob Heitzman
I too have osteoporosis. I have had two broken legs, one about eight years ago and one about five ye......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: CPK level is high (in Open Topic) by Bob Heitzman
That has been my experince...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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Kennedy's Disease Association
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