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Discussion Topic  Electronic Medical Records and Clinical Trails (in Medications and Therapies) by Bob Heitzman
Years ago I ran across some proposed federal legislation that advocated truncating the later stages ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Bob Heitzman
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Most Annoying Inconviences of SBMA (in Open Topic) by Bob Heitzman
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Things that work for me... (in Accesibility) by Bob Heitzman
Since my original post in 2005 I too have added a Golden Lift Chair. I still needed to place the ply......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: AFO - One that appears to work (in Accesibility) by Bob Heitzman
The AFO didn't work all that well for me. I'm pretty far along and I don't walk more than a few feet......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: AFO - One that appears to work (in Accesibility) by Bob Heitzman
I'm going to give it a try even though I'm not walking much at all these day. Looks like it might p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: New Exercise Program (in Exercise Discussion) by Bob Heitzman
When I was going through the transition to a power chair I used some simple guidelines. I continued ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Discussion Topic  RE: Am I Giving Up? (in Open Topic) by Bob Heitzman
Been there done that.... Being that SBMA is progressive most of us have gone/will go through the pha......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Cell Phone & Falling (in Open Topic) by Bob Heitzman
I keep my cell on a lanyard around my neck whenever I'm dressed. I use a walker and I keep an old c......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Muscle relaxers (in Medications and Therapies) by Bob Heitzman
I had the experience, and I think others have posted messages to the same, that the cramping was a p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bob Heitzman
Make sure your doctor's are aware of the issues surrounding anesthesia for SBMA patients. The curren......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bob Heitzman
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Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bob Heitzman
Davey - My impression is that the Dentist has several options as to how they induce numbness. In the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bob Heitzman
I'm wondering why there are so many innovative devices like these coming out of Canada and not out o......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: How are you dealing with Kennedy's Disease in your life? (in Open Topic) by Bob Heitzman
As I posted before there is an on-line community that does a very good job of tracking ALS. They hav......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Toilets (in Mobility Aids) by Bob Heitzman
I used a standard commode chair of the toilet for quite a while. Eventually had to place spacers und......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Power Chair/Scooter or Manual Wheelchair (in Mobility Aids) by Bob Heitzman
I added power steering assist to my Dodge Caravan with IMS lower floor/ramp conversion. I selected t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Supporting a Husband whose Family is in DENIAL... (in Spouses & Significant Others) by Bob Heitzman
Georgia, be sure to see the ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Very helpful post! I kind of had discovered on my own that breathing in very slowly during a "choki......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: 2008 Conference (in Open Topic) by Bob Heitzman
Here is a link to the ASC-J9 research paper: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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