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Discussion Topic  RE: Knowing when to slow down (in Open Topic) by BC Paul
Some of our largest muscles are within our hips and can be the first to lead to problems if ignored.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anyone with knowledge in Melbourne Australia (in Open Topic) by BC Paul
Studies have also been published from From Prince of Wales Medical Research Institute and Prince of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Anyone with knowledge in Melbourne Australia (in Open Topic) by BC Paul
you could try Molecular Medicine Laboratory, University of Sydney, Australia, or the Concord Clinica......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Things that work for me... (in Accesibility) by BC Paul
Love your practical solutions Bob, have you tried a button hook? they are not hard to build your ow......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility

Discussion Topic  RE: Cabaletta (in Medications and Therapies) by BC Paul
Cabaletta (trehalose) has been approved for Stage three trials for OPMD. Here is an NIH link about t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Cabaletta (in Medications and Therapies) by BC Paul
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Ageing with Kenndy (in Open Topic) by BC Paul
Sleep. or lack of quality sleep is perhaps the greatest contributor to cognitive decline.but, some r......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Ageing with Kenndy (in Open Topic) by BC Paul
Hi Anna, Knowing what is the result of KD as opposed to 'normal' ageing is difficult. My 95 year old......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Apple peels and green tomatoes? (in Food and Nutrition) by BC Paul
Just have to add, "an apple a day" Un peeled. (ursolic acid is also in cranberries and is thought re......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Apple peels and green tomatoes? (in Food and Nutrition) by BC Paul
There is a link to KD studies and mitochondrial dysfunction, Dan. New studies show truncated fragme......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Food and Nutrition

Discussion Topic  RE: Question about kennedys and CPK levels (in Open Topic) by BC Paul
My CPK (and all other blood levels) are in the normal range; CAG repeat of 43. There was no family h......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Questions about how you were diagnosed? Please help.. (in Open Topic) by BC Paul
Hi Trent, I was diagnosed at 60 after several years of problems only because my younger brother sev......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Request for treatment before disease onset (in Open Topic) by BC Paul
Early information and access to sites like this have given you a tremendous advantage Henry. When i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Link between kennedy's disease and osteoporosis? (in Open Topic) by BC Paul
This was published in 2001,FRACTURE RISK IN PATIENTS WITH MUSCULAR DYSTROPHY AND SPINAL MUSCULAR ATR......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Brugada Syndrome in SBMA - new study (in Open Topic) by BC Paul
DISCUSSION In the present study, we demonstrated that subjects with SBMA exhibit several forms of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Impact of lack of Testosterone Absorption on Sexual Characteristics and Identity (in Open Topic) by BC Paul
DB .. I am sure that there are many many gay, bi, and transsexual men who have KD, just as there are......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Impact of lack of Testosterone Absorption on Sexual Characteristics and Identity (in Open Topic) by BC Paul
In the study "Gender Diagnosticity and Androgen Receptor Gene CAG Repeat Sequence" it states, " in p......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Inconsistant weakness (in Open Topic) by BC Paul
I know the feeling John, just sprained my ankle getting up from the table Rrrrggghh!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Use of cane causing shoulder weakness? (in Mobility Aids) by BC Paul
I would treat the reduced mobility as a shoulder injury. compression, heat and assessment by a physi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids

Discussion Topic  RE: Stiff Neck, anyone? (in Open Topic) by BC Paul
I also have some mobility issues with my neck, and CT scan has shown osteophytes on several vertebra......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic


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