I would like to know if anyone has tried Electrical Muscle Stimulation or EMS. EMS is a technology used by bodybuilders, athletes, and muscular dystrophy patients. It involves taping electrodes to the skin, then using a very small electric current to stimulate the muscles. This can be very effective for those who are unable to exercise.
The following website, which is by an SMA (not SBMA) patient, says he has been using EMS for 8 years with good results.
More background on EMS can be found at the following page
Needless to say, you should talk to your doctor before trying anything like this, but I am curious if anyone has tried it for KD. Thanks.This message has been edited. Last edited by: Dan B,
Dan, thanks for bringing this question to the forums. My husband tried to bring it up in one of the chat sessions but I believe his question was unanswered. I will check out the links you posted to provide to him in the meantime as he has recently been experiencing significantly more difficulty with his swallowing. Thank you.
Kennedy's Disease Association
PO Box 1105 Coarsegold CA 93614