Hi from the UK,
My dad, diagnosed with Kennedy's 20 years ago, is currently in hospital with a suspected stroke. The doctors have discovered that his potassium levels in his blood are low, and he is also suffering from a very bloated stomach, and problems going to the toilet. The doctors are saying that this is a symptom of Kennedy's Disease, but I am not so sure. I have searched the web for any links to water retention but cannot find any. I suspect the doctors know very little about the disease and are clutching at straws.

Has anyone else heard of a link between KD and potassium levels/water retention?

Thanks in advance.
Claire

I think I may have read/heard something about potassium levels having or leading to heart issues. I have not heard anything regarding water retention being caused by KD.

Maybe one of the other members can supply additional info.

I will keep your Dad in my prayers.

I also am not aware of water retention being related to KD. My potassium levels have been in the normal range for over thirty years - since first being diagnosed with KD.