Hi my name is Amy Kaczmarek. I am a Genetic Counseling student at Arcadia University. I am requesting that men with Kennedy’s Disease voluntarily participate in a research project. I am investigating the use of various social support systems and ways of coping by men with Kennedy’s Disease as my Master’s Degree thesis project.
Participation would involve completing an online survey that takes approximately twenty minutes. Participants must be age 18 or over, have a diagnosis of Kennedy’s Disease, reside in the United States, and have internet access. Consent to participate in the survey will be done online prior to beginning the survey.
If you need additional information please contact me:
akaczmarek@arcadia.edu
If I am unable to answer your questions, you may also contact my faculty advisor –
Kathryn Spitzer Kim, M.S., C.G.C.
E-mail spitzerk@arcadia.edu
Phone 215-517-2598

Below is the link to the survey:
http://www.surveymonkey.com/s....DpJmyxCY_2bipA_3d_3d

Thank you for your time,
Amy Kaczmarek

Thank you! I for one will be sure to participate.

As I mentioned in my blog, I completed the survey Friday. Some of the questions were thought provoking and gave me ideas for future blog posts.

The survey is confidential (no personal information is collected).

So Amy, did you find anything to help us?

Bruce, I love your blog! I had trouble getting to sign in but I'm in now. I am learning a lot from the blog and appreciate your writing.

Lo, I am happy to hear it is helpful.