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RE: Anyone with KD in your 20's/30's? (in Open Topic) by Robert Greer Todd, my weight training experience in my youth and now mirror yours. In my teens I had great coachi...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Anyone with KD in your 20's/30's? (in Open Topic) by ToddAllen Maurice, I'd love to hear more of your story. I am impressed you squatted 450 lbs with KD genetics....... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Anyone with KD in your 20's/30's? (in Open Topic) by Robert Greer Hi Young, My name is Maurice I'm 66 I've been living with the effects of KD since my late 20's. I wa...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Sensible workout routines for early stage KD (in Exercise Discussion) by Owen ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion RE: Sensible workout routines for early stage KD (in Exercise Discussion) by Bob Heitzman This forum is not very active these days. Facebook is the place to post today: ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion Sensible workout routines for early stage KD (in Exercise Discussion) by Owen Hi all. I am absolutely certain this was the forum I posted on a few years ago, however I cannot for...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion RE: HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by ToddAllen I tried HMB for a couple months but did not see an effect and did not continue. I had already trans...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by KirillP Hi, I was lifting almost my whole life and experimenting with various supplements I started HMB abou...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies KD-Men's Zoom Chat (in Open Topic) by bluefo A monthly ZOOM-CHAT has been initiated. It will take place on the 2nd Saturday of each month. For mo...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Pravastatin (in Medications and Therapies) by Mike Murphy My PC wants me to start taking 5mg of Pravastatin to lower my LDL which is a tad on the high side. I...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen There is awareness of the potential of enzalutamide as there have been studies of it and related dru...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou Thank you for your reply. We are consulting KD experts in China, but we have no results yet, I would...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen Thanks for the detailed response. It is good to see your friend is trying to collect data to evalua...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou my friend continue tests his health data... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou this is my friend response:My age is 35, and I have had three CAG repeat tests for 46,55 and 51 time...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen Sorry for my delayed response. I was hoping to find more information on the potential of ARV-766 an...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou Here it is:https://ir.arvinas.com/news-releases/news-release-details/arvinas-announces-upcoming-bavd...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou DEAR Mr.ToddAllen,Thank you for your answer.My KD friend, He took Enzalutamide for a month, CK from ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen Hi, welcome to this forum and thanks for your excellent questions. Several androgen blocking prosta...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou One topic discussed ar-protac can solve Kd problem. ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou Hello,my friends,I am a kd patient from china.The questions I need to ask include the following five...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers Several understandings in the diagnosis and treatment of Kennedy's disease (in Discussion of Papers) by micheldou KD chinese technical group of the draft In November, 2023 1. Androgen blockade, how AR antagonists a...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers RE: Carrier of the disease (in Carrier Discussion) by ToddAllen Here is a paper that suggests the KD mutation is several times more common than estimates based on r...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion Carrier of the disease (in Carrier Discussion) by Imokru2 My late brother contracted Kennedy’s but I did not. My mother of course was the carrier. I live in t...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion RE: Hopeful News (in Medications and Therapies) by ToddAllen Both drugs are in the first phase of testing which does not tell us about the benefits or side effec...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies Hopeful News (in Medications and Therapies) by Reba Hi, everyone, Just wondering if you have seen these clinical trials and what your thoughts are: ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen Excellent post Bob, I hope you have been doing well. I have had a lot of ups and downs but my over ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Bariatric Surgery on KD pacients (in Open Topic) by Bob Heitzman I concur with Todd on Keto diet. There is a spectrum on the amount of carbs per day: Low Carb <10...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen I did a quick search but didn't find anything on KD patients having bariatric surgery. Here is a li...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Bariatric Surgery on KD pacients (in Open Topic) by Vanko Are there any known studies about bariatric surgery on KD pacients? I'm a 44 years old male carrier,...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic Advice for pre-symptomatic patient (in Open Topic) by Pablo Crespo Hi everyone, My name is Pablo Crespo, and I'm 24 years old. I was diagnosed with Kennedy's disease ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic	» Refine Search » New Search

RE: Anyone with KD in your 20's/30's? (in Open Topic) by Robert Greer
Todd, my weight training experience in my youth and now mirror yours. In my teens I had great coachi......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Anyone with KD in your 20's/30's? (in Open Topic) by ToddAllen
Maurice, I'd love to hear more of your story. I am impressed you squatted 450 lbs with KD genetics.......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Anyone with KD in your 20's/30's? (in Open Topic) by Robert Greer
Hi Young, My name is Maurice I'm 66 I've been living with the effects of KD since my late 20's. I wa......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Sensible workout routines for early stage KD (in Exercise Discussion) by Owen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

RE: Sensible workout routines for early stage KD (in Exercise Discussion) by Bob Heitzman
This forum is not very active these days. Facebook is the place to post today: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

Sensible workout routines for early stage KD (in Exercise Discussion) by Owen
Hi all. I am absolutely certain this was the forum I posted on a few years ago, however I cannot for......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion

RE: HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by ToddAllen
I tried HMB for a couple months but did not see an effect and did not continue. I had already trans......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: HBM or HMB Supplements to combat muscle breakdown / catabolism? (in Medications and Therapies) by KirillP
Hi, I was lifting almost my whole life and experimenting with various supplements I started HMB abou......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

KD-Men's Zoom Chat (in Open Topic) by bluefo
A monthly ZOOM-CHAT has been initiated. It will take place on the 2nd Saturday of each month. For mo......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Pravastatin (in Medications and Therapies) by Mike Murphy
My PC wants me to start taking 5mg of Pravastatin to lower my LDL which is a tad on the high side. I......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
There is awareness of the potential of enzalutamide as there have been studies of it and related dru......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Thank you for your reply. We are consulting KD experts in China, but we have no results yet, I would......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Thanks for the detailed response. It is good to see your friend is trying to collect data to evalua......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
my friend continue tests his health data...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
this is my friend response:My age is 35, and I have had three CAG repeat tests for 46,55 and 51 time......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Sorry for my delayed response. I was hoping to find more information on the potential of ARV-766 an......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Here it is:https://ir.arvinas.com/news-releases/news-release-details/arvinas-announces-upcoming-bavd......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
DEAR Mr.ToddAllen,Thank you for your answer.My KD friend, He took Enzalutamide for a month, CK from ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by ToddAllen
Hi, welcome to this forum and thanks for your excellent questions. Several androgen blocking prosta......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
One topic discussed ar-protac can solve Kd problem. ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

AR- Antagonists，PROTAC) for metastatic prostate can deal with kd (in Discussion of Papers) by micheldou
Hello,my friends,I am a kd patient from china.The questions I need to ask include the following five......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

Several understandings in the diagnosis and treatment of Kennedy's disease (in Discussion of Papers) by micheldou
KD chinese technical group of the draft In November, 2023 1. Androgen blockade, how AR antagonists a......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers

RE: Carrier of the disease (in Carrier Discussion) by ToddAllen
Here is a paper that suggests the KD mutation is several times more common than estimates based on r......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

Carrier of the disease (in Carrier Discussion) by Imokru2
My late brother contracted Kennedy’s but I did not. My mother of course was the carrier. I live in t......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Carrier Discussion

RE: Hopeful News (in Medications and Therapies) by ToddAllen
Both drugs are in the first phase of testing which does not tell us about the benefits or side effec......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Hopeful News (in Medications and Therapies) by Reba
Hi, everyone, Just wondering if you have seen these clinical trials and what your thoughts are: ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen
Excellent post Bob, I hope you have been doing well. I have had a lot of ups and downs but my over ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Bariatric Surgery on KD pacients (in Open Topic) by Bob Heitzman
I concur with Todd on Keto diet. There is a spectrum on the amount of carbs per day: Low Carb <10......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

RE: Bariatric Surgery on KD pacients (in Open Topic) by ToddAllen
I did a quick search but didn't find anything on KD patients having bariatric surgery. Here is a li......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Bariatric Surgery on KD pacients (in Open Topic) by Vanko
Are there any known studies about bariatric surgery on KD pacients? I'm a 44 years old male carrier,......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Advice for pre-symptomatic patient (in Open Topic) by Pablo Crespo
Hi everyone, My name is Pablo Crespo, and I'm 24 years old. I was diagnosed with Kennedy's disease ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

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