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Exercise and accupunture (in Open Topic) by Bruce Peter, thank you for your comments. I have used accu-pressure and found it to be helpful for specif...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Some advice please (in Open Topic) by BruceCam is correct. The test for KD is specific to that disease. It is a Yes you have it or No you don...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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New Promising Treatment for SBMA (in Open Topic) by BruceHere are several links. Unfortunately, we do not have a subscription to Nature Magazine or the abst...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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New Promising Treatment for SBMA (in Open Topic) by BruceDr. Andrew Lieberman from the University of Michigan and a member of our Scientific Review Board had...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Carrier of KD (in Open Topic) by BruceI believe you you and your husband should consult with a genetic counselor. They can help you weigh...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Gettting tested for Kennedy Disease (in Open Topic) by BruceYour GP can take the blood and send it off to a special lab (there are several in the country). It ...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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SBMA (in Medications and Therapies) by BruceThere is no known treatment or cure for KD. There is a clincal trial on a potential treatment takin...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies
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Exercise (in Exercise Discussion) by BruceI just wanted to update everyone on our progress on receiving answers from our neurologists on wheth...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Exercise Discussion
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RNA interference therapy (in Open Topic) by BruceDr. Andrew Lieberman from the University of Michigan and a member of our Scientific Review Board had...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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RNA interference therapy (in Open Topic) by BruceInteresting. I'll check with one of our neurologists on the Scientific Review Board on this. Thank...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Grab Bars for Shower or Bath (in Accesibility) by BruceFollow-up: I have been using the grab bars for several months and find them quite helpful. They pr...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Accesibility
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swallowing (in Spouses & Significant Others) by BruceI can understand the situation and concern. There is swallowing exercises that I have been practici...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Spouses & Significant Others
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Does cold Weather affect KD? (in Open Topic) by BruceThe above idea about using uncooked rice as a bed warmer is a great idea. These are the type of sim...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Toilets (in Mobility Aids) by BruceThree years ago I had a handicapped height commode installed. It did only add 2". Over time it jus...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Mobility Aids
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Look What I Found!!! (in Open Topic) by BruceThere is another update from NIH on the trial that requires additional action from those who wish to...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Look What I Found!!! (in Open Topic) by BruceYes, this is the same trial the KDA contacted you about earlier. If you already expressed your inte...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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looking for bruce (in Open Topic) by BruceHey Dave, northern Georgia. Send your email address to me at kennedysdiseaseinfo@gmail.com and I wi...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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I feel bad posting this... (in Open Topic) by BruceThanks again for sharing. I am happy to hear that you were finally able to share some of your conce...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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I feel bad posting this... (in Open Topic) by BruceWell, first I want to thank you for sharing your concerns. Coming out of the closet is very difficu...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic
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Recently Diagnosed (in Open Topic) by BruceThere are a couple of good examples of exercises in the 'Exercise' section of this forum. Several K...... Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic | » Refine Search » New Search |
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Kennedy's Disease Association
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Email: info@kennedysdisease.org