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Discussion Topic  RE: Mask wearing Covid question (in Open Topic) by Bob Heitzman
Maybe this Google search: face mask frame...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  Two things I should have done earlier (in Medications and Therapies) by Bob Heitzman
Colostomy and Intermittent self-catheterization (ISC.) I know, yuck! As my symptoms progressed it......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Neurologist Visits (in Medications and Therapies) by Bob Heitzman
Having a neurologist on your medical team is important IMO. Since SBMA is a neuromuscular disorder i......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Assessment (in Open Topic) by Bob Heitzman
Note that high ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Assessment (in Open Topic) by Bob Heitzman
A common strong indicator for SBMA is if you have relatives with similar symptoms on your mother's s......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Euthanasia (in Open Topic) by Bob Heitzman
Prayer!!...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Suspect I have KD, but some symptoms don't match... (in Open Topic) by Bob Heitzman
If anyone up your mother's side of the family tree has similar problems that would be a strong point......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Concerned - Seeking Answers (in Open Topic) by Bob Heitzman
Some of your symptoms are consistent with KD, but asymmetrical muscular atrophy at 22 is not (as far......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Pillow recommendations? (in Open Topic) by Bob Heitzman
I use two - a firm thin traditional for sleeping on my back, and a "side sleeper." The side sleeper ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Probably not applicable to SBMA'ers. It might be useful for leg cramps which seems to be a phase of ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
It will help if you start considering the spasms as annoying and not scary. You can't fight the spas......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Unfortunately, there isn't a single word. Perhaps a phrase may be needed e.g. "appears to be chockin......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: laryngospasm (dry Drowning) Choking (in Open Topic) by Bob Heitzman
Note that a laryngospasm is not choking - different pipes....
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Jaw locking (in Open Topic) by Bob Heitzman
Some of us have had jaw problems that may have been related to sleep position. In my case, I was sle......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: facial muscle weakness (in Open Topic) by Bob Heitzman
I had jaw pain and found if I made sure to support my jaw while sleeping on my side it prevented the......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: neck collar, smart exercise with diagram/photos (in Open Topic) by Bob Heitzman
......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Bob Heitzman
Sounds like it might be time to shop around for another doctor. The reasoning/threat sounds more ant......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Marijuana CBD vs. Opioids (in Medications and Therapies) by Bob Heitzman
Are you sure about the clinic's position? Seems like they should be willing to explore alternatives ......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Medications and Therapies

Discussion Topic  RE: Alpt of pain in thighs (in Open Topic) by Bob Heitzman
I didn't see mention in your posts about getting the SBMA genetic test. Is that in progress?...
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Open Topic

Discussion Topic  RE: Laryngospasm Article (in Discussion of Papers) by Bob Heitzman
My experience is about the same. Having confidence from previous events and knowing it will end even......
Kennedys Disease Association Homepage > Kennedys Disease Community > Forums > Discussion of Papers


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